Charli is my 2yr old daughter she is battling an unknown illness that attacks her liver. Dr's worldwide are working on figuring out what is going on. She also has a spinal problem which led to spinal fusion surgery which is why she is in a Halo.

•July 19, 2012 12:08pm
I would like to introduce my self. I am Brian Williams. I served 14 years in the Army and I have spent the last 7 years employed as a police officer in Wichita Falls, Texas.
I have spent my life serving and protecting our citizens and Country.
I can’t, however protect my 2 yr old daughter. She will be 3 on July 21 2013.
My baby girl Charli was born 3 weeks early. We spent the first week of her life in the hospital for medical complications. Over the last 2 years we have been to the E.R numerous times for the same issues: high fever and vomiting. During one of our visits, the E.R. Dr. on duty (thankfully) had the foresight to run more than the routine blood work. It was discovered that she had an elevated liver count (over 10000 in her AST ALT counts - the normal parameter is only 50). Her liver had basically stopped working .We were care flown to Cooks Children Hospital in Fort Worth 2 hours away. Cooks was/is a Godsend. The Doctors there did more extensive testing and found that Charli will likely need a transplant. During the testing they also discovered that her #2 vertebrae is floating freely (not attached to her other vertebrae). This is a whole different issue. She needs to have this fixed before the disk slips and paralyzes her. She is now in a neck brace until this can happen. The kicker to this is she can’t have her neck surgery until her liver is fixed…kind of a catch 22. The liver is one of the main organs that helps fight infection and controls clotting.

•September 5, 2012 10:55am
Ok, we were back in Fort Worth last week for a MRI on Charli's spine. The MRI revealed that her #2 vertebrae has shifted and is pinching her spinal cord. We will know more sometime this week on when they plan on doing the surgery which should be soon.
We are still waiting for one last test on her liver to find out what is wrong as of right now all the other test have not showed any information and have come back normal.
Charli is still wearing her neck brace 24/7 and will continue to do so until they operate on her. She is a trooper and the brace does not seem to bother her one bit. I know that I would go crazy not having mobility.
We are still trying to raise money to assist us in medical expenses. Each trip to Fort worth is a 300 mile round trip and we have had to stay in a hotel a few times do to the early appointments and have to restrict Charli from eating or drinking 6 hours before appointments.

•September 17, 2012 12:29pm
Charli is scheduled for spinal fusion surgery on Sept 25. They are going to take part of her hip bone and fuse it to her #2 vertebrae. She will be placed in a Halo device for at least 4 months and undergo extensive physical therapy. We should also get back her last genetic blood test at that time. This will help us in hopefully knowing what is causing her liver to shut down and maybe tell us if she has a genetic defect.


I am asking for all prayers we can get, and if anyone wants to help financially we will be forever thankful!

Any funds that are not used to cover medical expenses for Charli will be donated to Cooks Children Hospital, so I will be paying it forward to help others in need.
Any amount is helpful from a penny on up and adding us to your prayer list doesn't cost anything and one can never have too many prayer warriors.

I ask that if you can’t help in any way that you pass on this link to other family, friends, coworkers and even your church leaders.

Thank you all for your time and support.