Your share could raise $30
Before you go, did you know that simply by sharing this campaign, you could help it raise $30? It's an effective way to support the cause.No thanks
- Add on tab
- Pin it
Jane Dufoe hasn't added a story.
When my sister, Andrea Temarantz, was pregnant with my nephew, Ryder, he was diagnosed with Down Syndrome. That news was so scary for everyone to hear. We never want anything "bad" for our kids but my sister & brother-in-law, Joey Temarantz, were amazing about it. They accepted it & educated themselves along with the rest of their family members. When Ryder was born we were all prepared for all sorts of health issues to arise. Amazingly, not one health issue, that has to do with Down Syndrome, has materialized. Ryder has met every "normal" marker & measurement for a "typical" 4 month old baby. Such "normalcy" for his first 4 months is probably why what has gone on over the last 5 days has been so shocking.
About 2 years ago Andrea happened to see a post on Facebook with a young girl whose eye was glowing. She said she remembered that this was a sign of something being wrong but truly didn't pay too much attention. Over the last 4 months she has taken a TON of photos of her new baby boy, Ryder. Recently she noticed that his left eye seemed to have a strange "glow" in many of the pictures.
By the grace of God Andrea happened to mention this at Ryder's 4 month checkup on Tuesday, January 5th. 24 hours later they were told that Ryder has cancer in his left eye.
On Thursday, January 7th, Joey & Andrea checked Ryder in to the Phoenix Children's Hospital for an MRI & a more in depth look into Ryder's eyes. Praise God that this cancer had NOT yet spread to his brain or to his other eye.
Joey & Andrea were given options for treatment:
1. remove the eye
2. get a port inserted in their 4 month old son & start chemotherapy.
Yuck to both of those options.
Kids with Down Syndrome already have an increased chance of developing leukemia. 6 rounds of chemo would sharply increase that risk of Ryder developing a secondary cancer. Removing the eye seemed to be the way to go. Then they met with the oncologist. He said that this type of retinoblastoma MIGHT be the kind that will ultimately attack both eyes. This information was a game changer. Now, if we could salvage some vision in this eye it would be better for him in the long run.
Obviously the best thing to do would be to find out exactly WHICH type of retinoblastoma he has and then decide on a course of treatment! Sounds logical doesn't it?!?
Nothing can just be simple when your kid has cancer.
The genetic testing to determine which type of retinoblastoma Ryder has won't be back for 6 weeks. Their choice of treatment for Ryder has to be determined this week because these tumors can grow quickly. So frustrating but this is the situation we have before us. Ugh.
One of the doctors at Phoenix Children's Hospital mentioned that a hospital in New York does a unique chemotherapy delivery method for this exact type of tumor. If Joey & Andrea could make a decision that could save Ryder's eye and NOT push chemo poisons throughout his 4 month old body that would be PERFECT.
The Temarantz family found out today that Ryder has been approved by the physician in New York & is officially a candidate for this treatment!
Ryder is taking his mom to New York City! They are leaving tomorrow & going on the ultimate roadtrip!
They are so very blessed to have found this cancer early.
They are so very blessed to have this opportunity to treat it without endangering his already compromised immune system further.
They are so very blessed with an amazing support system of family & friends.
They are so very blessed to have each other & to have the opportunity to raise their sons, Joe & Ryder.
They would be so very blessed if we could all help them out as they face, not only the stress of the situation, but the suffocating costs of everything that will be involved in this journey.
Please #PrayForRyder as he begins his battle against retinoblastoma.
On behalf of my baby sister, Andrea, her amazing husband, Joey, and two of my beautiful nephews in Arizona, Joe & Ryder, thank you.
HighlightsSee all activity322
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Add to a Facebook Page tab
You can add to a tab on any Facebook Page which you manage.
Please note that as of Nov 2017, only Pages with 2,000+ fans are able to install custom tabs.
How to remove a Page tab It looks like you don't have a Facebook Page yet. How to create a Facebook Page It looks like you don't have a Facebook account linked. Click here to edit your account settings
Share a link
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.