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heidi-rae was diagnosed with sma type one at 5 months (december 1st 2014) and sadly passed away on the 7th of december 2014) at 5 months old.none of the family or friends had ever heard of sma,sma is spinal muscular atrophy and ther are four types.type one is believed to be the most common form of sma,it causes severe muscle weakness which can result in problems moving eating breathing and swallowing,these symptoms are usually apparent at birth or during the first few months in life.the estimated life span for a baby with sma type one is 1-2 years.we would like to raise awareness of sma.we are fundraising for heidi-rae an headstone to try and help towards expenses, https://m.facebook.com/profile.php?id=371424026370108 this is heidi raes facebook page,please donate xxxxx
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