It's that time of year again!!! On Saturday, October 12th, Kendall and I will be apart of Kaylee's Annual Fundraiser to raise money for Progeria Research. We have been blessed to be apart of the event for the last 3 years, and raising money for 4 years now. Of all the things we do, this is the one thing that blesses our lives more than any other. The Halko family is an amazing family that has touched our lives in a way that we could never begin to explain fully. We are humbled and honored to know them and do what we can to help raise money for such an amazing cause, amazing family, and Kaylee!
WHEN DONATING MONEY PLEASE IN NOTE AREA LET US KNOW IF YOU WOULD LIKE MONEY DONATED OR IF YOU WOULD LIKE US TO CREATE A THEMED BASKET TO DONATE IN HONOR OF YOUR FAMILY TO THEIR SILENT AUCTION AT KAYLEE'S COURSE. Ideas for baskets are Ohio State Basket, I Love to Read (Children's Book), Family Night (Board games, Movies, snacks), Must Love Dogs, Spa Day for Mom (Bath products, etc, for hideaway in bath), or any idea you would like! Pictures will be posted on Instagram and Facebook with family name so you can see. Thanks again.
Hutchinson-Gilford Progeria Syndrome “Progeria” or “HGPS” is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children*. Its name is derived from Greek and means "prematurely old." While there are different forms of Progeria*, the classic type is Hutchinson-Gilford Progeria Syndrome, which was named after the doctors who first described it in England: in 1886 by Dr. Jonathan Hutchinson, and in 1897 by Dr. Hastings Gilford.
About PRF...With the exception of our staff, everyone involved with PRF is a volunteer! Our Board of Directors, Clerk, Treasurer, committee members, translators, fund-raisers, etc. all devote their time, energy and talents to furthering our mission without pay. As a result, our administrative costs are very low. This leaves more money to devote to medical research and raising public awareness, which ultimately lead to finding a cure for Progeria.
About Progeria...Although they are usually born looking healthy, most children with Progeria begin to display many characteristics of Progeria within the first year of life. Progeria signs include growth failure, loss of body fat and hair, aged-looking skin and stiffness of joints. As children get older, they suffer from osteoporosis, generalized atherosclerosis, cardiovascular (heart) disease and stroke. The children have a remarkably similar appearance despite differing ethnic backgrounds. Children with Progeria die of atherosclerosis (heart attacks or strokes) at an average age of thirteen years. Progeria affects approximately 1 in 4 - 8 million newborns. There are an estimated 200-250 children living with Progeria worldwide at any one time. It affects both sexes equally and all races. Since The Progeria Research Foundation was created in 1999, we have discovered children with Progeria living in over 40 countries.