Welcome to our crowdfunding page to help 9 year old Malika. She's suffering from a terrible genetic blood disease. We are collecting money to pay her family's medical bills and operation to remove her spleen as soon as possible. 

13 NOV 2017 Major update: We now know the exact name of the disease. Thanks to you people who believed in her and donated money so she could get her medical research! Thanks to everyone who was thinking about the well being of this little girl!

About us: Prepare yourself for a trip around the world

My name is Bart (from The Netherlands) and I've started this project after I've learned from my friend Nadira, that her 9 year old niece Malika (from Kyrgyzstan) is very sick and in desperate need of a cure. Malika has been diagnosed with Spherocytic hemolytic anemia' (severe), an autoimmune disease. 

About Malike and her condition

Malika (born 16/12/2007) is a nice, beautiful, intelligent and very talented young girl, native of Kyrgyzstan, Central-Asia. Malika is a purposeful character and every day she’s struggling for her life. This girl tries to hold on, but her organs are giving up, she does not have the strength to even smile now. Malika was diagnosed with a form of Spherocytic hemolytic anemia, or Hereditary Spherocytosis. First we collected money to get her to a hospital in Moscow to be examined by a specialist because we did not know yet what kind of amnemia she suffered from. 

Now the doctor said: She needs her spleen removed a.s.a.p. It will not be sure if she will survive this prodecure. But if she doesn't remove the spleen quickly, she will have no future at all. So in other words....it is very critical. 

Watch a short video about Malika and her mother (in Russian).

Malika loves to play with dolls and to sew doll clothes. Her other hobby is to have fun with play doh, as you can see in the video. She has one younger brother and lives together with her family (Mrs. Tahmina and Mr. Pope Ravshan) in Bishkek. Read a background story on this Kyrgyz website for more info (in Russian, use your browser's translator).

How much money do we need?

Important

EU-citizens: Problems with donating by Paypal or Creditcard? Contact us and we will provide an IBAN nr.

Malika and her family are desparetly in need of money for an operation to remove Malika's spleen and medication afterwards. We have no idea yet how much this will cost, but the operation will costs $ 2.000.  So fare we have collected 420 dollars. The amount you see in this page is also the total of the first goal: get Malika to Russia to see a specialist. 

Now, to put things in perspective: Malika's father (Pope) earns $150 per month as a taxi driver. Don't be surprised; this is a decent income in Kyrgysztan. However, you'll understand this is not enough to pay hospital bills.

For Russian speaking people

Ниже мои данные для перевода денег:
Исакова Надира, номер карты 4276380040163409

Read Russian update

Information about Hereditary Spherocytosis

Hereditary spherocytosis (HS) is a disorder of the surface, called the membrane, of your red blood cells. It causes your red blood cells to be shaped like spheres instead of flattened discs that curve inward. The spherical cells are less flexible than normal red blood cells. Malika has the severe and more rare type.

Spherocytosis causes your red blood cells to break down faster than healthy cells do, which can lead to anemia. If spherocytosis causes anemia, you may appear paler than normal. Other common symptoms of anemia from hereditary spherocytosis can include:

Symptoms

• fatigue
• shortness of breath
• irritability
• dizziness or lightheadedness
• increased heart rate
• headache
• heart palpitations
• jaundice
• Gallstones

Cause

Hereditary spherocytosis is caused by a genetic defect. If you have a family history of this disorder, your chances of developing it are higher than someone who does not. People of any race can have hereditary spherocytosis, but it’s most common in people of Northern European descent.

Sources: visit this website

“If you want happiness for an hour, take a nap. If you want happiness for a day, go fishing. If you want happiness for a year, inherit a fortune. If you want happiness for a lifetime, help somebody.”– Chinese Proverb

Regular updates will be posted about the progress of Malika's fight! The collected money will be transferred directly to the family for medical bills. Photo's and other proof will be posted regulary in the updates so you can be sure your money is going to the right cause! Let us help this little angle to survive.