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Help Emery Jr. fight ALD Adrenoleukodystrophy !!
$190 raised
8% of $2.5k goal
7 contributors
3 Years running
Emery Jr. is a typical boy who smile can lighten a room ,but recently he was diagnosed with X-linked ALD. X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin ...

Emery Jr. is a typical boy who smile can lighten a room ,but recently he was diagnosed with X-linked ALD. X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. He has to under go treatments and travel back and forth to doctor's appointments.This Fundraiser is to help with those expenses and to help get him to travel to a hospital where he can recieve a experimental treatment of Lorenzo's Oil. Recent evidence suggests "Lorenzo's Oil," administered to boys with X-ALD may prevent or delay the appearance of the childhood cerebral form which can occur from X-ALD. He needs your help to keep that glowing smile on his face.

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