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We are needing help for travel expenses including but not limited to gas, vehicle maintainence, eats, hotel stays, etc for Jackson's many medical appointments and/or hospitalizations. This funds can also help provide Jackson some of the items he needs that are not covered by his insurance companies such as vitamins, over the counter medications, diapers, wipes, and overnight diapers (he is not potty trained nor capable of being potty trained at this time), shoe lifts, and more. Jackson is a 7 year old little boy with a contagious smile!! He will warm your heart with just a smile!! He was born at 26 weeks into the pregnancy weighing in at one pound 4 ounces. At four days old he had a bilateral grade four intraventricular hemorrhage and a pulmonary hemorrhage. This was the first time it was said that he was not going to make it!
His medical issues include cerebral palsy, hydrocephalus, a vp shunt, chronic lung disease, asthma, failure to thrive, a g-tube, inappropriate sinus tachycardia, developmental delays, intellectual disability, epilepsy, growth hormone deficiency, ADHD, motility issues, eating problems due to facial asymmetry and poor oral motor skills, he is an aspiration risk and a choking risk, cortical blindness, estropia, hypermetropia, lack of coordination, poor balance, sensorinueral hearing lossand more. He is on 13 daily medications including a daily shot and 5 as needed emergency medications. This stems from being born at 26 weeks and having a brain hemorrhage and lung hemorrhage at 4 days old. His NICU stay was 198 days. He has had 25 surgeries in his life. 4 was in the month of May in Chapel Hill. Last July he stopped breathing and was on life support in Brenner's PICU for 10 days. This was not the first time we have heard the words "he might not make it".
This benefit is going to help get the funds needed for his many appointment travels.For now his travels include a minimum of 4 appointments per week with the closest being 45 minutes away from his home. In the month of November he has a genetics appointment and a feeding specialist appointment at a hospital that is 2-3 hours away from his home.
Please help us with funding so that Jackson can have what he needs in order to travel for his appointments.
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