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Hello,my name is Shay my story begins when I was born at 42 weeks weighing a healthy 7lb11oz. When I was born I was starved from oxygen for 40 minutes which led to me being brain damaged. I was transferred to neonatal intensive care unit at royal infirmary of edinburgh where I was cooled with a cooling treatment to reduce swelling to my brain, Hours and days passed that my mummy & daddy worried. I had a lot of tubes & wires attached to me and I am tube fed because I can't swallow. Not having a safe swallow is a life- threatening condition and can be dangerous when I am sick. They were told that I might not survive and to expect the worst. I spent 3 weeks in intensive care before being transferred back to st john's childrens ward.
I stayed in the children's ward for 7 weeks where I got stronger and into a stable routine to go home. My mummy & daddy had to learn all my care needs such as suctioning and tube feeds. I was discharged on 24th of august and got to go home with my mummy and daddy. I proved all the doctor's wrong.
I was still unwell when I first went home and in december I suffered several infantile spasms and now I suffer from epilepsy. I have grown stronger since I have been home but I struggle to gain weight and have to have special high calorie milk to make sure I gain enough weight. I suffer from developmental delay which means I can't sit up, talk, walk or play like other kids my age can. I suffer from evolving quadreplegic cerebral palsy which affects my daily life. I recieve physiotherapy and speech and langauge therapy but my mummy and daddy don't see any improvement from standard physiotherapy.
I am now in need of further treatment for my cerebal palsy which is not available on the NHS. Me, my mummy and daddy would like to ask for your support to help us raise funds for me to recieve ABR therapy. This costs around £5000 per year and could help me eat, sit up and maybe even walk on my own in the future. I would love to be able to do these things and play with all my cousins and friends and get to achieve as much as I can from living life with cerebal palsy.
http://www.abrscotland.com/Pages/MoreAboutABR.aspx
Thankyou for everyones support.
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