Thank you everybody. Our campaign is now over.
Change "CF" to "Cure Found"
$220 raised
4% of $5k goal
5 contributors
0 days left
Ended Jun 29, 2014
Meet Norah Cooney. Life is no different than it has ever been for Norah, but living with Cystic Fibrosis (CF) is a challenge. Each morning and night, she receives chest percussion therapy for 24 minutes while listening to “Thomas the Train” to move ...
Meet Norah Cooney. Life is no different than it has ever been for Norah, but living with Cystic Fibrosis (CF) is a challenge. Each morning and night, she receives chest percussion therapy for 24 minutes while listening to “Thomas the Train” to move her mucus and help clear her lungs. To help her gain weight vegetable oil is added regularly to her foods for extra fat grams and salt added to her bottles to ensure she gets all the sodium her body needs.
With no federal funding, the money raised supports CF patients and medications come directly from the CF Foundation to us – what a force! Now we feel like we can help by being an advocate for Norah and raise awareness. We want everyone to know that we believe we can beat this. Each dollar raised truly means something to us. Researchers are so close! Norah’s life can expect to be long and healthy if the right drugs get to the market in time.

Norah’s parents Marlayna and Jason Cooney, with support from the Cystic Fibrosis Foundation, have assembled a team of Norah’s biggest fans to build an event that will raise awareness, celebrate life and fundraise to find a cure.

Thank you for your consideration and support toward this important cause and the Inaugural Night Out for Norah on August 23rd at St. Patrick’s Church in Taylor Mill, KY; 7pm-11pm

Event Tickets on sale at www.nightoutfornorah.com; $30/per person includes live music, food, drinks, silent auction and raffles.

Unable to attend on August 23rd? Donations appreciated! Norah, and 30,000 others waiting for a cure, THANK YOU!
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