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As most of you are aware Gadi was born with a rare genetic blood disorder called Hemophilia where he has a deficiency of the protein blood factors which doesn’t allow his blood to clot properly. Generally people who have Hemophilia are missing only one factor but our Gadi is missing 3 factors.
- Gadi is 1 in 100 000 people who have inherited combination Hemophilia .
- In this disorder, levels of both factors are much lower than normal therefore the clotting reaction is blocked prematurely and the blood clot does not form
- Bleeding is most commonly internal into the joints and/or muscles. It can happen without an obvious cause (sometimes called ‘spontaneous’), or as a result of injury.
- Over time this internal bleeding ('bleeds') can cause severe arthritis, chronic pain and disability.
We would love to help other people with this rare genetic disorder like Gadi by donating to Hemophilia South Africa’s research. If you are able to give any amount of tzedaka* (a donation) in honour of a refuah shelmah(full recovery) for Gadi Doran Chaim Ben Kayla.
Any amount will benefit important research and families in need!
We would really appreciate it!
* The Jewish traditions states that giving tzedaka and doing good deeds in someone's name can contribute to their recovery and that helping others is the best response we have in unfortunate situations
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