Addisyn Rose Simpson
This is a long story, but please take the time to read all of it. Thank you!
My tiny little princess Addi was born on the 08.12.2017 weighing 4 pound 5 ounces, absolutely tiny for a full term baby but my little Addi unfortunately had other issues.
Addisyn was my fourth child, I have Kade - 6 , Kobi - 3 & Ivy - 15 months! After having 3 perfectly healthy beautiful babies prior I didn't expect to be told at my 20 week scan that I would have to go back for a specialist scan because they had found abnormalities in my daughters heart.
Unfortunately worst then first thought Addisyn would be born to suffer from the worst congenital heart defect -Tetralogy of Fallot (TOF). Having TOF means that instead of one CHD Addisyn suffers from 3+. Addi has 2 VSD's (holes in her heart) one being quite large that requires surgery before she is 6 months old, her outflow tract that connects her heart to her lungs is far too narrow, she has a thickened right ventricle & one of her main arteries is in the wrong position so it is not pumping blood the right way. The worst part about it all is the chd's she has all affects blood flow to her lungs, Addisyn is on a heart monitor consantly, she struggles with breathing quite often, she gets tired very quickly, her weight is stunted (she is nearly 2 months old and the same size as a normal newborn baby) , she sometimes turns blue from lack of oxygen & even if she gets too wound up or loses her breath when she cries she will turn blue & start having seizures! TOF is fatal if left untreated, 50% of TOF sufferers who don't seek treatment die before the age of six!! That is why it is super important we get Addi all the help we can get for her!
Unfortunately no one in Tasmania specialises in TOF so we have to travel to Melbourne to be seen for all of her appointments regarding her heart and even more unfortunately there is no funding allocated to help us with these travelling cost. Addi's first specialist appointment is booked for next month and we have had to pay $200 in flights return, $170 on a hotel in Melbourne CBD and we have had to put $200 aside for anything else I may have to pay for (taxi's, food etc) That is $570 just for one appointment and these are appointments Addi has to attend monthly until surgery.
Addisyn has to have at least 3 open heart surgeries to correct her TOF. That makes for at least 3 times we have to fly to Melbourne and pay for accommodation for 3 weeks over there while she recovers! The Hospital will pay for Addisyn and myself's flights and subsided accommodation but if we want my husband & our 3 other children to be able to come and support there sister / daughter we will have to fund there flights and accommodation! I have spent no more then a full 48 hours without seeing my children, if we are unable to afford to have them come to Melbourne with us I would be absolutely devastated and so distraught and with them only being 6, 3 & 14 months old they are far too young to be without there mother for 3 week periods! So PLEASE dig deep & if you are able to please donate to us to help fund Addisyn's Medical & travelling expenses we would be forever grateful!! We would love to be all kept together as a family! ♥ ♥
CHD = congenital heart defect
