Congenital central hypoventilation syndrome (CCHS) is a rare, life-threatening disorder that affects breathing. People with CCHS take shallow breaths (hypoventilate) which causes a shortage of oxygen in the blood; as a result, they need machines or implants to help them breathe, such as ventilators or breathing pacemakers.
In December 2013, my first novel, CONTROL, was published by Dial/Penguin and features a teen protagnist, Zelia, who has CCHS. But Zelia is fictional; there are many real children and teens suffering from and living with CCHS.
I've asked the very generous children's literature community to help donate their books, time, and expertise to help raise money for CCHS research and patient care. With your help, we can make a difference!
All donations will go to the Ann & Robert H. Lurie Children's Hospital of Chicago's Center for Autonomic Medicine in Pediatrics (CAMP), an internationally renowned program that researches CCHS and treats these special patients.
Thank you to all the participating authors who are donating books, swag, and critiques:
Perks
- 5 claimed
Get a package of buttons, bookmarks, and other swag from your favorite YA authors!
- 3 claimed
- 12 remaining
Onyx and silver necklace (replica of CCHS pacemaker worn in CONTROL) plus button, signed bookplate, stickers and bookmarks
- 1 claimed
- 4 remaining
Signed copy of the book that was inspired by the brave children with CCHS!
- 0 claimed
- 9 remaining
Have your query letter critique by a participating author or publishing pro.
- 1 claimed
- 10 remaining
Get the first 15 pages of your book critiqued by a participating author or publishing pro.
- 0 claimed
- 11 remaining
Receive a 30-minute Skype, Google+, or phone call for you and your friends from one of the participating authors.
- 1 claimed
Receive eight books from our participating YA authors! A mini-YA library, ready to give as gifts, or share with friends and family!
- 0 claimed
- 1 remaining
For this amount, Amie Kaufman/Jay Kristoff will make you a character in their next book, Illuminae! Please note that the character will not have a speaking part. He/she may die in the book! Seriously. Illuminae's publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 0 claimed
- 1 remaining
For this amount, April Tucholke will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 0 claimed
- 1 remaining
For this amount, I.W. Gregorio will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Christina Farley will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Lydia Kang will make you a character in her next book! Please note that the character may or may not have a speaking part in the book. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Melissa Landers will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book, or planet.
- 1 claimed
- 0 remaining
For this amount, Tonya Kuper will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
Highlights
See all activity64Activity
- 5 claimed
Get a package of buttons, bookmarks, and other swag from your favorite YA authors!
- 3 claimed
- 12 remaining
Onyx and silver necklace (replica of CCHS pacemaker worn in CONTROL) plus button, signed bookplate, stickers and bookmarks
- 1 claimed
- 4 remaining
Signed copy of the book that was inspired by the brave children with CCHS!
- 0 claimed
- 9 remaining
Have your query letter critique by a participating author or publishing pro.
- 1 claimed
- 10 remaining
Get the first 15 pages of your book critiqued by a participating author or publishing pro.
- 0 claimed
- 11 remaining
Receive a 30-minute Skype, Google+, or phone call for you and your friends from one of the participating authors.
- 1 claimed
Receive eight books from our participating YA authors! A mini-YA library, ready to give as gifts, or share with friends and family!
- 0 claimed
- 1 remaining
For this amount, Amie Kaufman/Jay Kristoff will make you a character in their next book, Illuminae! Please note that the character will not have a speaking part. He/she may die in the book! Seriously. Illuminae's publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 0 claimed
- 1 remaining
For this amount, April Tucholke will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 0 claimed
- 1 remaining
For this amount, I.W. Gregorio will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Christina Farley will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Lydia Kang will make you a character in her next book! Please note that the character may or may not have a speaking part in the book. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
For this amount, Melissa Landers will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book, or planet.
- 1 claimed
- 0 remaining
For this amount, Tonya Kuper will make you a character in her next book. Please note that the character may or may not have a speaking part in the book. He/she may die in the book! Seriously. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
