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Congenital central hypoventilation syndrome (CCHS) is a rare, life-threatening disorder that affects breathing. People with CCHS take shallow breaths (hypoventilate) which causes a shortage of oxygen in the blood; as a result, they need machines or implants to help them breathe, such as ventilators or breathing pacemakers.
In December 2013, my first novel, CONTROL, was published by Dial/Penguin and features a teen protagnist, Zelia, who has CCHS. But Zelia is fictional; there are many real children and teens suffering from and living with CCHS.
I've asked the very generous children's literature community to help donate their books, time, and expertise to help raise money for CCHS research and patient care. With your help, we can make a difference!
All donations will go to the Ann & Robert H. Lurie Children's Hospital of Chicago's Center for Autonomic Medicine in Pediatrics (CAMP), an internationally renowned program that researches CCHS and treats these special patients.
Thank you to all the participating authors who are donating books, swag, and critiques:
Leave a thank you comment and we'll notify your supporter.
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Please note that the character may or may not have a speaking part in the book.
He/she may die in the book! Seriously.
The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 0 claimed
- 1 remaining
Please note that the character may or may not have a speaking part in the book.
He/she may die in the book! Seriously.
The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
Please note that the character may or may not have a speaking part in the book.
He/she may die in the book! Seriously.
The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
Please note that the character may or may not have a speaking part in the book. The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
- 1 claimed
- 0 remaining
Please note that the character may or may not have a speaking part in the book.
He/she may die in the book! Seriously.
The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book, or planet.
- 1 claimed
- 0 remaining
Please note that the character may or may not have a speaking part in the book.
He/she may die in the book! Seriously.
The author’s publisher may require the person whose name is going to be used to sign a release. The name may be used to depict a non-human item, such as a location, or book.
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