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Hope for Kaiden's Heart
$270 raised
27% of $1k goal
10 contributors
4 Years running
On October 30th, 2012 @ 10:44 pm, I gave birth to a beautiful baby boy named Kaiden Michael Houston. There were no problems throughout the pregnancy up until delivery. When my water was broke, the doctor saw meconium. At that time, the fetal ...

Last summer in July at just 8 months old, Kaiden was diagnosed with a heart disease called Hypertrophic Cardiomyopathy which causes an enlargement of the heart due to abnormally thick muscle. The cardiologists and geneticists were 120% sure he had a fatal genetic disease called Pompe. After running genetic tests 4-5 times it came back negative for Pompe and they were unable to link the disease to anything genetic. So they gave up on him. They did not want to run anymore tests. They told us he is not eligible for a heart transplant because he has Cerebral Palsy. Apparently in order to receive a transplant of any kind, every other organ must be working properly. So based on a neurological standpoint, he is not eligible. They also told us without a transplant, he has 5-10 years to live.

Finally, on May 23rd, we went to a different cardiologist for a second opinion on his heart. We received the worst news yet. Due to all of the muscle in his heart it has to pump 2x as fast to get all of the blood from his left ventricle throughout the rest of his body, brain, and lungs. He is on a beta blocker called Propanolol to slow his heart rate to allow his left ventricle enough time to pump the blood before sending it off. However, the passage that allows the blood to flow throughout his entire body is very narrow, it is actually almost closed. When this passage closes the blood will stop flowing and he will suffer from cardiac arrest then death. The doctor told us this is the worst case of that disease that they have ever seen. There is an open heart surgery they could perform to cut some of the muscle but Kaiden is so high risk that there is an 85% mortality rate and they believe if he did survive it the muscle would grow back within 2 weeks. The only option he has is to get a transplant. We are currently working on getting a referral to the hospital in Little Rock, Arkansas for a transplant evaluation. Kaiden's insurance is for the state of Tennessee only so if he is approved for the transplant then we will have to fight them to help us.

Right now we are in a waiting game. All we can do is spend all of our time with him and hope for a miracle. He has been through so much in his short life but he continues to thrive. Unless we see him give up then we will continue to fight for him. He has numerous appointments monthly along with countless therapies and we have to travel all the time. We continue to pray daily and we know God can hear us. There is no time limit that can be put on Kaiden's life, omly he and God can make that choice. We have so many prayer warriors on our side and we are so grateful for everyone who has joined us on this journey. Please continue to pray for our sweet boy.

For anyone who like updates on Kaiden, you can visit him at

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