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Help Felix with medical expenses!
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$4,025 raised
97 contributions
12 Years running
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By Cindy Harvey
Personal campaign Keep it all Oromocto, NB, CA Report
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Felix has had problems with his digestive system since birth. His last biopsy showed that his intestine does not contain nerve cells. He can be days, even weeks without having bowel movements and when he does, it is usually the size of a pop can or even larger. Felix has been through so much in the past 9 years. At the age of 2, he started to have enemas every week until he was 6. Many rectal exams, in-tubing, days without eating, barium enemas and the list goes on. Since his birth, we have had to travel to major urban centers to seek care and answers. We finally met the perfect match in Halifax at the IWK Children's Hospital. We have a dream team with his pediatric gastroenterologist Dr,.Gamal Mahdi and gastroenterologist surgeon Dr.Romao that follows Felix and takes every step necessary to find the root of the problem. His next major biopsy will occur the first week of October 2013. They will try to find how far does the lack of nerve cells go and test for Hirshprung disease. From there, Montreal's Ste-Justine Children Hospital will be taking over. He currently takes copious amounts of PEG3500, Senna and Ducolax which is not covered by any medical insurance. His mother has to be home to orchestrate every medical appointments, stay at home with Felix when he is not feeling well with stomach pains (He does miss a lot of school because of it). We are on one income and with the amount of travel we have already done and will have to do in the coming years, his medical team suggested the idea of fundraising. So here we are asking for your support.

One thing is for sure though, Felix's Spirit remains high through all this ordeal. He is very brave and always makes sure that our spirit remains high as well!

Félix a des problèmes avec son système digestif depuis la naissance. Sa dernière biopsie a révélé que ses intestins ne contiennent pas de cellules nerveuses.
Il peut être des jours, des semaines sans faire des selles et quand il le fait, c'est généralement la taille d'une canette de boisson gazeuse ou même plus gros.
Félix a vécu tellement de choses au cours des 9 dernières années. À l'âge de 2 ans, il a commencé à avoir des lavements chaque semaine jusqu'à ses 6 ans. De nombreux examens rectaux, intubé du nez à l’intestin, des jours sans manger, lavements barytés et la liste continue. Depuis sa naissance, nous avons dû se déplacer vers les grands centres urbains pour obtenir des soins et des réponses. Nous avons finalement rencontré le match parfait à Halifax à l'Hôpital pour enfants IWK. Nous avons finalement une équipe de rêve avec son pédiatre gastroentérologue Dr. Gamal Mahdi et gastroentérologue chirurgien Dr.Romao. Ils suivent Félix depuis 2 ans et prennent toutes mesures nécessaires pour trouver la racine du problème. Sa prochaine grande biopsie aura lieu la première semaine d'Octobre 2013. Le chirurgien effectura plusieurs prélèvements tout le long des intestins. Ils vont aussi essayer de déterminer si Félix souffre de la maladie Hirshprung . De là, l'hôpital pour enfants Sainte-Justine de Montréal, prendra la relève.
Il prend actuellement de grandes quantités de PEG3500, Senna et Ducolax qui ne sont pas couverts par les assurances médicales. Sa mère doit être à la maison pour orchestrer tous les rendez-vous médicaux, rester à la maison avec Félix quand il ne se sent pas bien avec des douleurs (il manque beaucoup d'école ). Nous avons un seul revenu depuis que nous avons commencé à voyager pour Félix. Les montants des voyages que nous avons déjà fait et nous aurons à faire dans l’années à venir est exorbitant, son équipe médicale a suggéré l'idée de collecte de fonds.
Donc, ici, nous faisons appel à votre soutien.

Une chose certaine cependant, l'Esprit de Félix reste élevé malgré les épreuves. Il est très courageux et fait toujours en sorte que notre esprit reste élevée aussi !
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