For our daughter Katie Renfroe and our family
$505 raised
13 contributors
4 Years running
Our daughter Katie was born with possibly two disorders.
Megalencephaly and Proteus Syndrome. They are both very rare disorders which is why a definite diagnosis is hard. Over the next few years surgery will be done to try and reduce the effects ...

Our daughter Katie was born with 
Megalencephaly  is a very rare  disorders which is why a definite diagnosis is hard. Over the next few years surgery will be done to try and reduce the effects these conditions have on her life. They are expensive and it is a full time job to care for her and our family. The trips are 8 hour drives to south Florida and sometimes it means taking our entire family to Hollywood, FL for her to receive surgery and care.

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