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niki Doughty-Lee hasn't added a story.
Annie was born healthy and developed normally until she was about 12 months old. Soon after her first birthday her family became concerned because she was showing no signs of crawling or walking and she wasn't hitting her milestones in other areas too. After numerous investigations from professionals over a period of a year, her family received the most devastating news on the 14th Dec 2014 that Annie had Rett Syndrome.
Rett Syndrome is a rare genetic neurological disorder that occurs randomly and affects about 1 in 12,000 girls. It causes many problems with communication as many girls cannot walk, talk or use their hands to communicate. They can need 24 hr care for most of their lives. Annie has already started to loose the use of her hands
Annie's daddy, Stephen, and a family friend Rich are trying to raise £6,000 for Rett UK (Registered Charity: 1137820 ) This charity is researching treatments for this disorder and will hopefully be able to find a cure one day. Stephen and Richard are running the London Marathon in April 2015. However my campaign and current auction is intended to support their fundraising efforts and additionally, because Annie has already started to loose the use of her hands, money is now needs to be raised to help her family purchase specialist equipment. At the moment they need to find a minimum of £4,000 to purchase an “Eye Gaze”. This is a computer that picks up on what Annie is looking at. Annie may never be able to talk and tell her parents what she wants or feels so this equipment will enable her to communicate with her parents and other care givers.
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