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Please help my son Jonathon, he has recently been diagnosed with a Tumor on his adrenal gland and kidney. There are no specialist on this disease for children in my state. We have had to travel to Cincinnati Ohio at our own expense for him to be seen. And are now being sent to Boston children's hospital. Please find it in your heart to help us help him. Thank you and God bless you. Pheochromocytoma: Usually benign, pheochromocytoma refers to a rare tumor of the medulla that secretes excessive amounts of the hormones epinephrine and norepinephrine, resulting in high blood pressure. An estimated 800 cases are diagnosed yearly in the United States, making it extremely rare. The most common symptoms are headache, heart palpitations and excessive and inappropriate perspiration. Less commonly encountered symptoms include nervousness and anxiety, tremor, paleness, nausea, weakness, chest or abdominal pains, fatigue and weight loss. Pheochromocytoma tumors occur in less than 1 percent of hypertensive patients and 90 percent of them are benign. Experts recommend that all hypertension sufferers be screened with blood or urine tests for overproduction of catecholamines or theirmetabolites since pheochromocytoma tumors secrete theseneurotransmitter hormones in excess. In fact, checking for high levels of adrenaline or cortisol is usually done for adrenalmalignancies of both the medulla and cortex. In either case, further CT scans or MRI will help your doctor determine the location and extent of the disease. Pheochromocytoma can be life threatening if untreated and can cause stroke or damage to the kidneys, brain or heart. Drugs are available to control symptoms prior to tumor removal.
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