Help Gia And Mom Go To Spina Bifida Conference
$630 raised
16% of $4k goal
15 contributors
3 Years running
Hi Friends, As most of you know Gia was born with Spina Bifida.  Unfortunately Spina Bifida does not stand alone.  In Gia's case there are many medical issues that arise without a moment's notice.  Urology, Hematology, Neurology, Neurosurgery, ...

Hi Friends,

As most of you know Gia was born with Spina Bifida.  Unfortunately Spina Bifida does not stand alone.  In Gia's case there are many medical issues that arise without a moment's notice.  Urology, Hematology, Neurology, Neurosurgery, Nephrology, Endocrinology, Pulmonary, Orthopaedics and now added to lhe list Infectious Disease. This past week Gia was hospitalized for 5 days with a viral infection which was multi drug resistant thus resulting in IV antibiotics.

During this past year it has become increasingly hard to transition from pedicatrics to adult care. There are so many factors to consider and at times seems impossible to find the right doctor and the right care.  

For many years Gia and I have traveled throughout the states to attend the National Spina Bifida Conference. It is a wonderful experience to meet up with old friends and meet new friends.  It is through this conference that we find the latest in up to date research, treatment, equipment, medications, surgeries, education, etc. Needless to say, attending this year's conference would be extremely beneficial to both Gia and myself.  It would mean so much to Gia to be able to spend time with her many friends that she's made along the way while attending kid's camp, teen camp and now adult forum.

I am hoping that our many friends and family will find it in their hearts to help us to be able to attend this year's conference.  I know that I am extremely late in asking for help, but I thought I might have been able to swing it. Unfortunately at this time our financial situation will not allow us to attend this year's conference in Anaheim, CA.  Hotel Rate is $190 per night, transportation to and from the airport, meals.  I have not been able to secure a flight as airfare is extremely high at this time.

Our intended plans would be June 28th to July 4th.

Thank you all from the bottom of our hearts.

Much Love,

Norma Jean & Gia 

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