Bone Tumor Awareness Fund
$1,248 Raised
25% of $5k goal
28 contributors
2 Years running
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Hello family, friends, and supporters!  I am a 33-year old survivor of an extremely rare bone tumor (desmoplastic fibroma), and have decided to embark on a journey to create more awareness and provide funding for more research for these rare ... More ...
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Hello family, friends, and supporters!  I am a 33-year old survivor of an extremely rare bone tumor (desmoplastic fibroma), and have decided to embark on a journey to create more awareness and provide funding for more research for these rare tumors to help physicians and patients better understand these conditions, procedures, and treatment/recovery.

I am currently recovering after undergoing a more aggressive/radical treatment after a 2nd recurrence of this tumor (in my right femur, as pictured) to replace my knee as well as half of the femur - the typical treatment for malignant osteasarcoma (my 5th operation in total).  This is pretty much a testament to how aggressive and grueling these tumors are, whether they are benign or not - that the treatment is similar or can be identical to that of a cancerous growth of the bone.  

These tumors happen in the 2nd and 3rd decades of life; therefore, the majority of individuals enduring this pain, multiple operations, and lengthy recoveries are in their childhood, teens, 20's and 30's.  These are ages that are supposed to be the most active, fun, and joyful for youngsters and able-bodied people to be exercising, playing sports, etc.  Surgeries can be extremely invasive, painful, and continual.  

My goal is to create more awareness of these tumors that are vary rare (they make up approximately 2% of all tumors) and there are only about 120-200 orthopedic oncologists in the United States able to treat these rare growths.  Not to mention, in major cities and teaching institutions, rather than equally spread throughout - making it difficult for some patients to travel to see exactly who they need to see.

I'd like to be able to create a community where survivors of these tumors can share their experiences with one another and provide support, as well as to start a fund that will benefit research toward a particular body of medical science that will be dedicated to learning more about muskuloskeletal lesions/tumors.

For more information about bone tumors, please visit www.bonetumor.org. EVERY dollar counts.  Many perks are available to select with a donation.

PLEASE like us on Facebook, www.facebook.com/bonetumorawareness, and/or Instagram @bonetumorawareness.  Many giveaways of great products relative to orthopedics and recovery occur for members of the cause!

Please visit my caringbridge.org/visit/stephaniedaly page for my personal story, and for real-time updates of appointments, procedures, and recovery/treatment.

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Bone Tumor Awareness Fund Community

Our community shows our leading supporters and the contributions they've made or inspired by sharing our campaign. Learn more

to get your personal share link and see your position in our community.

How it works
To appear in our community, simply make a contribution to our campaign and show your name, or inspire a contribution from someone else by sharing your personal link (below). The more contributions you make or inspire, the higher you'll go and the more the campaign will benefit.

Perks

$5
Bone Tumor Awareness Sticker
  • 3 claimed
Show your support with a Bone Tumor Awareness sticker! Professionally printed by our friends at MOO, these are nice/shiny, and will show your support for the cause.
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$15
Bone Tumor Awareness BONE PEN
  • 6 claimed
Estimated delivery Mar 2015
This is such a GREAT way to spread the word - whether it's for yourself or for a friend/supporter/warrior or even your DOCTOR - this is a GREAT gift re; Bone Tumor Awareness. With a donation of $15, you will receive a bone pen, a BTA sticker, and some product samples from our generous donators!
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$15
BTA Beaded Women's Hairband
  • 2 claimed
Beautiful turquoise beaded hairband, BTA colored! You can style up your workout, OR add flare to a night on the town with a new hair accessory that adds a beautiful color to any outfit! THIS PERK will come with a BTA sticker and available partner samples.
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$15
The 'Original' BTA Support Bracelet
  • 7 claimed
  • 5 remaining
Handmade in Costa Rica, these bracelets are featured in Light/Medium Blue, Bone Tumor Awareness' color. They have an adjustable string enclosure - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.)

THIS PERK will come with a BTA sticker and available partner samples.
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$25
PREMIUM BTA Awareness Bracelet
  • 4 claimed
  • 0 remaining
Handmade in Costa Rica, these bracelets are braided premium bracelets featured in Light/Medium Blue, and white. They have an adjustable string enclosure with bead - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.)

THIS PERK will come with a BTA sticker and available partner samples.
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$50
(1) of each PERK!
  • 1 claimed
With a $50 donation to Bone Tumor Awareness fund, you will receive one of each perk! This would include an original bracelet, a premium bracelet, a bone pen, and a sticker. This is a GREAT deal!
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$10
Bone Tumor Awareness Support Bracelet
New and improved perks available today!
$15
Original BTA Bracelet
New Listing of this perk.

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