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ALS IS A PROGRESSIVE ,FATAL,NEURALDEGENERATIVE DISEASE WITH MOST AFFECTED PATIENTS DYING OF RESPITORY COMPRIMISE AND PNEUMONIA AFTER 2-3 YEARS ALTHOUGH SOME PERISH WITHIN A YEAR FROM THE ONSET OF SYMPTOMS,AND
OCCASIONAL INDEVIDUALS HAVE A MORE INDOLENTCOURSE AND SURVIVE FOR MANY YEARS.
ALS PATIENTS EVEN IN ADVANCED STAGES CAN STILL SEE,FEEL TOUCH,HEAR,SMELL, THE NERVES THAT CARRY FEELINGS OF HOT - COLD -PAIN - PRESSURE, OR EVEN BEING TICKLED ARE NOT AFFECTED, AND IN SOME PEOPLE WITH ALS THE PARTS OF THE BRAIN THAT ALLOW US TO THINK ,REMEMBER , AND LEARN ALSO ARE AFFECTED BY THE DISEASE.
THERE IS ONLY ONE DRUG AVAILABLE FOR ALS ITS CALLED RILUZOLE AND ONLY EXTENDS LIFE BY
ONLY 2-3 MONTHS.
MY WIFE TINA IS PROGRESSIVLY GETTING WORSE
AND NO LONGER CAN DO THE THINGS SHE ONCE COULD ,SHE HAS LOST THE ABILITY TO WALK ,AND USE HER HANDS VERY WELL. HER SPEECH IS STARTING TO GET IMPAIRED.AND EVENTUALLY HER MUSCLES THAT ALLOW HER TO BREATH AND SWALLOW WILL STOP WORKING AND SHE WILL DIE.
THIS IS EXTREMELY HARD TO WATCH HAPPEN !
TINA CAN NO LONGER MOVE HER BODY AROUND IN BED TO SIT UP AND EAT ETC.. FOR THIS REASON IM LOOKING TO GET TINA A NEW BED THAT SHE HAS
ALREADY PICKED OUT THAT IS FULLY ADJUSTABLE BY REMOTE . THIS BED MEANS ALOT TO TINA AND TO ME FOR THIS IS LIKELY TO BE WHERE SHE WILL TAKE HER LAST BREATH .
AFTER TINA GETS HER BED I WILL SET MY GOAL TOWARDS HER BUCKET LIST ITEMS .
SO PLEASE HELP ME MAKE THESE THINGS HAPPEN IN WHICH I WOULD NOT BE ABLE TO AFFORD ON MY OWN .
TINA IS THE STRONGEST BRAVEST MOST LOVING PERSON I KNOW . SHE HAS SPENT HER LIFE GIVING TO OTHERS AND NEVER ONCE PUT HERSELF
FIRST .HELP MAKE HER DREAMS COME TRUE BEFORE ITS TOO LATE.
HELP MAKE TINA'S JOURNEY ALL IT CAN BE !
THANKS AND GOD BLESS
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