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Denise Loewe- Pellegrino hasn't added a story.
Ethan was a healthy thriving boy in seventh grade doing what he loved. In April of 2013, he started to complain at night of pain in his leg and hip on his left side. His Dad and I gave him an ice pack and sent him back to bed with what we thought were growing pains. As the weeks went by, this continued off and on at night during the week. Then on Saturday, April 27th we went to a local theme park and by the end of the day Ethan was miserable. We comforted him throughout the weekend but on Monday I took him to the chiropractor and had x-rays done of his left hip. At that time there was no evidence of any bone issues, we were worried about a slipped hip or other things I had read. He received an adjustment twice that week and a total of two more the following two weeks and seemed to have relief and less symptoms of pain. Then on Sunday May 19th Ethan’s pain had changed he complained of back, stomach and pain while going to the bathroom. His Dad and I immediately thought kidney stones and knowing how painful they may be went to the South Lake ER. While at the ER they did blood work, a urine sample and a CT scan of his pelvic area. We then were told Ethan had a mass in his stomach and he needed an ultrasound to see if it was a liquid cyst or something more. The ultrasound showed some solid areas and we were told that we were going to be transferred to Arnold Palmer Children’s Hospital. JP and I thankfully were able to call dear friends to watch our daughters and get them to school on Monday as we continued to find out what was wrong with our son.
As we arrived at Arnold Palmer Children’s Hospital we were anxious of what was happening around us. Ethan was again being run thru tests. By Monday evening he had Bone scan, chest, and pelvic x-ray. Tuesday, he went for an MRI and Wednesday he was put under anesthesia for a biopsy on the mass. Each day we would receive news about the results. Monday was the hardest because that was the first time we had ever heard the words Ewing Sarcoma and we were terrified of what was going on inside our son’s body. Thursday we were told that it was Sarcoma but still had more tests to determine the type. This was to become the hardest day for us we had to tell Ethan and his sisters that he had Cancer. It was the hardest thing we ever did in our lives. There were more blood tests and the results were just a matter of time. Each of our children did great with hearing the news of Ethan’s condition. Ethan said he had three “rules”; no one can say the “c” word, no hugs and I will be OK!! Friday, Ethan received his port and had bone marrows taken. Friday afternoon we met with one of our doctors and we went over Ethan’s plan of treatment. It has been a very long week but we are ready to kick butt and as we write this our son has just finished 2 bags of his 3 bag cocktail of chemotherapy.
We know that this journey will be long but with our friends and family we will kick some butt!!!
Thank you for your positive thoughts and prayers and know our family appreciates all the love and support we are receiving and thank you from the bottom of our hearts!
JP, Colleen, Kirsten, Ethan and Chloe Wright
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