PRP FIGHT FOR THE CURE
$85 raised
38% of $224 goal
5 contributors
5 Years running
As you all may or may not know my sister has been battling a rare disease known as "NMO Neuromyelitis Optica" or "Devic's disease" for 16 years now. I have seen her faith tested time and time again and that has only prompted me to take action. My ...
As you all may or may not know my sister has been battling a rare disease known as "NMO Neuromyelitis Optica" or "Devic's disease" for 16 years now. I have seen her faith tested time and time again and that has only prompted me to take action. My sister and I are both very happy to venture on this journey to fight for the cure for this rare disease. Please be advised that our journey is not one that is accepting of the prognosis from the doctors but we believe as we go forth in faith healing not only for my sister but for many others will manifest." "I recently became an Official NMO Advocate joining with The Guthy-Jackson Foundation's fight for the cure. Neuromyelitis Optica is said to be very similar to MS (Multiple Sclerosis), which has led to numerous misdiagnosis. This was the case for my sister as well. Through this experience my sister and my family's faith has been tested and tried. Daughter of Michael and Robin Tramble who are both believers and musicians, my sister is also a vocalist and has been singing since she was 5 years old. Her story is one of many but ONE that with the help of many will be heard. Caring for my sister has inspired me to start non-profit - Purple Hearts - which focuses on providing education to the community, nation and the world about NMO (Neuromyelitis Optica), MS (Multiple Sclerosis), Autism and Mental Illness." "NMO Patient Day" will be the first effort for "Purple Hearts" in association with Purple Reels Productions to gain research for future community awareness video projects geared toward illustrating the symptoms, causes and solutions for people affected by NMO. ​ I am planning on attending the NMO Patient Day but need your help! The event takes place October 24, 2012 in Los Angeles, CA. Any donation big or small will help with the following: ​ - Travel Expenses - Equipment Insurance - Vlog/Marketing Support - NMO Community Awareness Efforts (Purple Hearts & Purple Reels Productions) - NMO Advocate Speaking Engagements THANK YOU IN ADVANCE FOR YOUR SUPPORT!!! MORE INFO on NMO PATIENT DAY: ​ The Guthy-Jackson Charitable Foundation’s NMO Patient Days offer patients, caregivers, family and friends a rare opportunity to spend a day with each other and leading NMO scientists and clinicians. Attendees get the latest information about NMO science and clinical treatments, while they share stories, reunite with old friends and make new ones and contribute to enhancing the NMO community. VISIT The Guthy-Jackson Charitable Foundation http://www.guthyjacksonfoundation.org/
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