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We need help for our son Landon. He is four years old and is suffering from Leaky Gut Syndrome. Please take a moment to learn about his condition, hear our story and understand why we are in desperate need of help. Thank you!
What is Leaky Gut Syndrome
Leaky Gut Syndrome (also known as increased intestinal permeability) is when the "net" in the digestive tract gets damaged, which causes even bigger holes to develop in the net, so things that normally can’t pass through, now have the ability to. Some of the things that can now pass through include proteins like gluten, bad bacteria and undigested food particles. Toxic waste can also leak from the inside of the intestinal wall into the blood stream causing an immune reaction.
The Effects of Leaky Gut Syndrome
Leaky Gut Syndrome is what starts as a gut barrier problem. If left un-repaired, it can lead to more severe health issues like inflammatory bowel disease, IBS, arthritis, eczema, psoriasis, depression, anxiety, migraine headaches, muscle pain, chronic fatigue, ADHD, asthma, lupus, fibromyalgia and potentially cancer.
How Leaky Gut Syndrome is Treated
Leaky Gut Syndrome cannot be treated with antibiotics because antibiotics damage the bowel environment by destroying beneficial bacteria and by promoting the growth of Candida and other fungi and yeast. This allows intestinal toxins to pass by the epithelium and enter the tissues and blood thus adding to the problem.
Leaky Gut Syndrome is treated by staying on an appropriate diet advised by a Naturopathic Dr. & receiving therapies and herbal remedies from a Naturopathic Dr. Patients may need up to 12 months of treatment for a complete recovery. Leaky Gut Syndrome at its heart is auto-toxicity. The need is to rehabilitate the selective barrier of the small intestinal wall, detoxify the body and restore liver, spleen and kidney functions. Think of it as “physical therapy” for your digestive tract except that it’s an abundance of nutrients and the removal of toxins that ignites restoration.
What is a Naturopathic Dr?
Naturopathic physicians combine the wisdom of nature with the rigors of modern science. Steeped in traditional healing methods, principles and practices, naturopathic medicine focuses on holistic, proactive prevention and comprehensive diagnosis and treatment. By using protocols that minimize the risk of harm, naturopathic physicians help facilitate the body’s inherent ability to restore and maintain optimal health. It is the naturopathic physician’s role to identify and remove barriers to good health by helping to create a healing internal and external environment.
The Eczema Battle
The word eczema comes from the Greek word ekzein meaning “to boil out”. Eczema is a chronic skin condition in which the skin becomes itchy, reddened, cracked and dry. Eczema has been called “the itch that rashes” because the itching usually occurs first. The more it rashes the more it itches and the more you scratch it the more it rashes often leading to infection. Not only does eczema itch but it often times burns, stings, blisters, scales, bleeds & weeps.
Landon scratches periodically throughout the day. I cant even begin to tell you how many times a day we have to divert his attention to something else to keep him from scratching. He occasionally screams in agony, and proclaiming that it burns & stings. It has reached infection many times. However, we started using using Kuumba Made's Healing Salve and their Calendual Coconut Oil about a year and a half ago and he has been infection free ever since. He also has been known to wake up in the middle of the night asking to have his legs rubbed, sometimes several times in one night. It’s been a heart wrenching experience as his parents to watch him suffer and not know what to do to make it better.
Our Journey
Landon started suffering from Eczema at six months of age. The eczema got progressively worse over time. We tried every over-the-counter cream and lotion imaginable in addition to steroid cream prescribed by his Dr. By age 2 Landon’s Eczema had become severe. He was suffering from skin infections on at least a monthly basis. The skin infections would spread like a disease including on his face and groin. He was almost always on antibiotics for six months due to the skin infections. At that time I was working part time as a server in the evenings and ended up having to quit my job due to nearly getting fired for having to be absent or go home early to care for Landon. Landon’s Dr. always told me that the Eczema was normal and I was told by several different Dr’s that we could treat it by giving him “bleach baths”. I know Eczema is not normal. Kids just did not have Eczema when I was a child. Nor was I ever open to the idea of giving him a bleach bath. After healing my thyroid naturally, I was convinced that I could solve Landon’s Eczema mystery.
I started researching online the possible causes of Eczema. Over 100 hours later and after one possible cause after another with symptoms that just did not match, I came across “Increased Intestinal Permeability”, also known as “Leaky Gut Syndrome” and I was convinced that this was what he was suffering from. I soon realized it was going to be very expensive to heal Landon’s gut as this condition is not recognized by Western Medicine due not being able to treat it with medication/antibiotics and none of his treatments or Dr. visits would be covered by insurance. Although we did not get him tested right away, I started treating him anyway as I was 100% sure that this is what he was suffering from.
We immediately changed his diet. He was on a very limited, very expensive diet for 3 months straight and his legs cleared up. The Eczema has always attacked his legs first. We also learned about salves to use on his skin instead of creams and lotions which just further aggravate the Eczema. The salves are also expensive. We eventually became broke and did not know what we were going to do. I started Landon’s online fundraiser in the Fall of 2013. We initially got a great response. But the buzz shortly died down and we are thankful for the funds that continue to occasionally trickle in. We were very thankful for the contributions we did receive as it definitely helped for a while.
We were able to get a few appointments with his Naturopath Dr. She told us that we were correct and that this is what he was suffering from and that we were taking all of the right steps with his treatment. Through talking about history we figured out how this all came about for Landon. Due to me being on antibiotics for my postnatal complications, it caused an overgrowth of Candida in my body thus leading to the “Graves Disease”. However, Candida can be passed through breast milk and that is how Landon easily received an overgrowth of Candida within his body thus leading to “Increased Intestinal Permeability”. She informed us that the Eczema is an autoimmune response to the "Increased Intestinal Permeability". In addition she started Landon on probiotics and informed us of some other helpful ways to aid in healing Landon’s gut. The final thing she said to us was that the most important thing to take care of financially is his diet, supplements and skin, and that visits with her come last on the list of priorities. She also informed us that it would take approximately 12 months of consistent treatment to heal Landon’s gut and be rid of the Eczema. That was the last time Landon has seen her as we have not been able to afford to see her since.
Last year we put together a fundraiser through "Comedy For Causes”. My father passed away in December of 2013 and as a result of his passing we had to move twice. This made it very difficult to promote the fundraiser as we were constantly busy and I was grieving. The comedy show took place at the "Comedy Palace” in Kearny Mesa. The turn-out was minimal. At the end of the show we had only raised $108 and the Founder of "Comedy For Causes” asked if she could use this money to pay the Comedians and that she would send us a check. After two attempts of reaching out to her for Landon’s funds, we never received that check. Here we are now. It’s been a battle to say the least. The Eczema is almost always bad to severe. He does go through periods of the Eczema being very mild to almost clear, yet still very itchy. But the flare-ups come right back. I know this is due to going through phases of having everything we need to not, in regards to his health.
I spent the earlier part of this year thinking of a fundraiser that could bring in a substantial amount of money, one that would make me work hard for the funds rather than sitting around with our hands held out (not that I’m typically sitting around) and one in which I would be in charge of all incoming funds to be rest assured that Landon would actually receive the funds. I came up with the idea of doing a vendor fair in our neighborhood after having participated in a craft fair with my mom last year and remembering how much she had paid for her space. While we aren’t charging nearly as much for the vendor spaces, it will be enough to give us the boost we need in addition to any funds raised from a raffle or auction at the event and any funds raised here on Landon's fundraiser page.
The main reason for being so pro-active in being sure that Landon’s gut gets healed is to be sure that it doesn’t lead to any of the more severe ailments that can come from it such as inflammatory bowel disease, IBS, arthritis, psoriasis, depression, anxiety, migraine headaches, muscle pain, chronic fatigue, ADHD, asthma, lupus, fibromyalgia and potentially cancer.
Also, I am currently going through classes to learn how to start a non-profit as I would like to be able to help other children with all ailments. In the event that we raise more funds than we need, the left-over funds will go towards building our non-profit organization. Please let me know if you have any questions. Thank you for your time. I look forward to your reply.
Why We Need Help
We are in desperate need of help to keep Landon on a path of recovery due to the fact that none of his medicine, Dr. appointments, treatments or therapies are covered by any insurance. Naturopathic care is very expensive. His initial visit cost was $195.00 just to give you an idea.
In addition over the last two and a half years, since we started him on an Autoimmune Paleo diet, our monthly grocery bill has more than doubled, in fact it has almost tripled. His diet consists of and requires organic, all-natural, GMO-free, gluten-free, grain-free, grass-fed and unrefined foods. We know this works because when we stuck to it, his symptoms subsided. Essentially, food is his medicine and it is very, very expensive. We try the best we can to give him what he needs but it doesn't always fit in our budget.
Our biggest fear is that we won’t be able to afford the care he requires to recover and that his condition will soon lead to one or more of the more severe health issues that I previously mentioned.
As previously mentioned, I had to quit my job to give him the care he requires on a daily basis. Because he can’t have refined or processed foods, all of his food has to be made from scratch. His daily care requires an application several times a day of an herbal salve to keep his skin moisturized to prevent breakouts. Most of my day is spent in the kitchen preparing his food, then massaging his skin, keeping up with household chores, homeschooling, fundraising and finding time to just spend quality time with him. I am homeschooling Landon due to him being rejected by two preschools and being referred to as a "health hazard". My husband works 5 days a week at his job and spends the weekends in the garage hand crafting knives to try to make extra money. I have a blog that I hope will soon be bringing in some money for us. I also mystery shop once in a while and do what I can to bring in extra money from time to time. It doesn't bring in much but every little bit helps. We don’t get much family time because we are doing everything we possibly can to make our son well and to keep him free from suffering.
Your generosity of any kind would be greatly appreciated and we will be forever grateful. We already are so blessed by the contributions we've already received and we are so thankful to have found a way to start a fund for him. Thank you for taking the time to read and learn about Landon’s condition. We love him very much and we won’t stop until he is well. If you are not in a position to contribute at this time, trust me, we understand. We just kindly ask if you would please share Landon's story on your social networks. For every person his story reaches it has the potential of reaching 10 more. We will keep all of you updated on his treatment and recovery. Also, a huge THANK YOU to the creators of FundRazr! We couldn't do this without you.
Another way you can help is by purchasing one of my husband's hand-crafted knives should you desire to do so. You can check out his knives at https://www.facebook.com/bluewaspknives
In the event that we raise more than we need it will be donated to another child with the same condition and in need of financial help for treatment. Who knows maybe it will turn into "The Landon Scott Foundation". That would be truly awesome. Thanks, again and bless you all! <3
For more information:
http://www.draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/
http://naturopathic.org/content.asp?contentid=60
http://www.drkaslow.com/html/leaky_gut.html
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