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At the end of Autumn 2013, our friend Penny Edwards was happily awaiting the arrival of her baby and excited at the prospect of embarking on a new life with her daughter Maddie; her step-daughters, Ruby and Robin, and her partner, Joe. In November 2013, Penny gave birth to a beautiful boy, who they named Billy. In 2014, Penny's life took a dramatic and tragic turn. In February, at just three months old, Billy died in his sleep. Six weeks later, Penny was diagnosed with metastatic melanoma, one of the deadliest forms of cancer. Since then life has been very strange and scary, but a lot of friends rallied around and helped to raise money to cover Penny and Joe’s bills, and to give them some semblance of stability and normality. The support was phenomenal. Thank you.
Penny is currently taking a drug called Zelboraf, which has helped to keep the tumours in Penny’s body under some kind of control. The bad news is that there is a strong possibility this drug will stop working within the next few months, as a result of the cancer cells in Penny’s body becoming resistant to it. That, sadly, is an expected process with all people using Zelboraf and when this happens, Penny’s likely life expectancy will be in the region of three to four months.
So. The question is what we do now.
In the UK, Penny’s options are limited and she has worked with her consultant at the Royal Marsden hospital to look at different options abroad. A number of leading consultants in both Europe and the United States have been contacted. It seems that the only course of action is for Penny to fly to the US for treatment, where she can try two possible approaches. They are:
- Undertaking Tumour Infiltrating Lymphocytes Therapy at the National Cancer Institute in Bethesda, Maryland.
- Undertaking Drug Combination Therapy at the Harvard Cancer Centre, Boston Massacheusetts.
The inevitable news is that flying overseas for treatment will be costly. But we would like to help, so are doubling our fundraising efforts. Many of us will be running marathons, and holding events, but a very simple way for people to donate is through this page. If you can spare anything, it would be greatly appreciated, and all of it will go towards paying for a course of treatment that could extend Penny’s life significantly.
Of course, we understand that many of you won’t know Penny and Joe, and may wonder where your money is going. If you have any questions or concerns, please email kiren.lall@gmail.com.
PLEASE SHARE.
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