Spina Bifida Awareness - Katelyn's Krusade
$420 raised
42% of $1k goal
17 contributors
4 Years running
Katelyn was born October 4, 2012 with Spina Bifida, an open neural tube defect in which the spine/spinal cord do not completely form, causing nerve damage below the defect location. Katelyn's myelomeningocele is at L4/L5, which is low on the spine, ...
Katelyn was born October 4, 2012 with Spina Bifida, an open neural tube defect in which the spine/spinal cord do not completely form, causing nerve damage below the defect location. Katelyn's myelomeningocele is at L4/L5, which is low on the spine, but she does not have feeling in or move her legs as much as we expected. She is quite the fighter, so we are hoping this improves as she grows. She also has other common conditions associated with Spina Bifida - Hydrocephalus, Chiari Malformation, Neurogenic bladder/bowel, club feet, inguinal hernia, hip dysplasia. She is also a preemie and has recently had breathing problems which are not yet diagnosed. She is currently at NCH and has spent 57 days of her first 4 months of life in the Nationwide Children's NICU.
This fundraiser is to raise money to support families of Spina Bifida children while they are admitted to Nationwide Children's Hospital for surgeries or procedures. Newborn babies with Spina Bifida spend time in the NICU right after birth to recovery from the initial spinal surgery and usually a brain surgery as well. It is also common for SB children to have dozens of surgeries by the age of 10 and they spend lots of time at the hospital. We know first hand how difficult it is for these babies/children and their families to be there. Katelyn's Krusade will donate 100% of funds to NCH gift cards to support Spina Bifida family needs during their hospital admissions.
If you would like to purchase a wristband, which benefits the same cause, go to Katelyn's Krusade Facebook Page and look for the 'Buy Wristband' Link.

Thank you for supporting those on this Spina Bifida Journey.
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