With Dusty’s permission, his family has opened a donation page for anyone who would like to join Dusty in his battle. Dusty does not desire sympathy. This is not a "poor me" campaign. This is a campaign to gather an even larger, and more powerful army, so we can all take down ALS together! Dusty says, "no cure" simply means there is no pharmaceutical cure. We just need to get creative.”
Dusty's story,
When Dusty was diagnosed with ALS and given three years to live, his world was flipped upside down! A very emotional time, that he does not wish upon anyone. The doctors even told him to go home and prepare to die.
Once the dust had settled after the diagnosis, Dusty began to educate himself in the world of ALS - after hundreds of hours of research, he boldly concluded that he could beat ALS and make a full recovery. And on top of that, he intends to make a movie so he can reveal his medical findings to the world, educate others, and inspire that nothing is impossible. You can do anything! Dusty has already wrote a Synopsis and has been meeting with producers.
Dusty is 41 years old. He is fit, eats well, and exercises often - why he has ALS, no one knows. Dusty is a loving father of two children, and he has three siblings. He considers himself very fortunate to have the amazing and loving support system of family and best friends that he does. Dusty is a past Professional Rodeo competitor of a 15-year career - he captured four Canadian Championships, and competed in Las Vegas, at the National Finals Rodeo. Dusty is an honest and hardworking man, and is a very disciplined, motivated, and determined person who will do anything to achieve his goals. Dusty also founded Trusted Dispatch and grew it into an international logistics software company - so we know Dusty is capable of amazing things; we believe he is going to beat ALS and have a massive impact on ALS around the world.
After traveling all over North America, Dusty found a doctor in Kelowna, Bc, who he believes is a great doctor that will assist in him beating ALS. Dusty relocated to Kelowna October 23rd, 2022, and has been working with this doctor since.
At his worst Dusty could hardly walk, talk, or swallow. He lost 20lbs. Although he has a-long road ahead, for now his swallowing is back to normal, he can walk freely, but not jog, his speech is still impaired. His hands remain very weak, and he struggles with fine motors like doing up buttons.
ALS is very hard to accurately diagnose, Dusty traveled North America, and visited many doctors over several months to get and confirm the diagnosis - as you can imagine, the cost has been high. And now the ongoing treatments, and supplements needed to beat this, it has all been a lot. No insurance is willing to cover any costs.
Over the months, Dusty has been amazed by so many people’s desire to support him in his journey - either through encouraging words, help with daily needs, and some even try to send money. All support has been wholeheartedly appreciated by Dusty and his family – it has all truly helped motivate and encourage Dusty in this battle.
After many conversations and much consideration, reluctantly, Dusty has agreed to let us open this funding campaign, for those who want to be a part of his journey. Dusty has never believed in receiving handouts, but he feels this has turned into more of a movement and he believes he can do great things with the support. One thing Dusty will guarantee you; the funds will be used effectively in his medical journey - and any leftover funds will go to a very good cause as he impacts the world of ALS.
Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe.
if you prefer etransfer, dusty.l@trusteddispatch.com
