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Simnara Musaieva hasn't added a story.
Greetings.
I am Simnara. I reside in Dnipropetrovsk, Ukraine and I apply to you for aid with this letter.
In January 2014 Taras Sauta, my husband, 34 years, was diagnosed with acute monoblastic leukaemia (C 93.0). Taras needs allogeneic bone marrow transplantation form a donor. This surgery is impossible in Ukraine as well as immunogenotypic analysis (neither of the relatives suit in the matter of the age). Specialists recommend us to undertake this surgery in Germany or Israel. We negotiated with clinics in both countries. Germany presented us with a bill of 289 596 euros, while Israel sent us a bill of 162 038 USD + 20 000 USD for possible complications that may arise during the operation (in case there are no complications, this additional amount shall be returned). Based on the results we have chosen Israel.
In May 2015 we visited Tel Aviv Sourasky Medical Center in Israel for professional consultation. Taras underwent medical tests to find an appropriate donor and start working with him/her (10 000 euros). Thus, we passed the first stage. The doctors confirmed the necessity of bone marrow transplantation. Since our family is completely underfunded, we cannot pay for the surgery. Due to the current situation Taras was recommended to undertake a course of light chemotherapy to strengthen remission. We have undertaken 7 courses already:
2 maintenance chemotherapy courses in the frames of 7+3 program in February 2014 (remission was reached); 2 therapy courses with cytosar in high doses; January 2015 – disease recurrence; 2 maintenance chemotherapy courses NAM with alexan and mitoxantrone in high doses (second remission was reached); 1 therapy course with cytosar in high doses. Currently the period of the after-treatment is lasting.
We invested our own funds in Taras’s treatment before, but now we have to ask for financial aid from aside, since we cannot cover the costs on surgery by ourselves. We applied to the Ukrainian charity funds, but they cannot help us. In the first turn they provide financial support to underage children, young people under 26 years and those involved in the armed conflict at the East of Ukraine. In addition, the sum is extremely huge. Many funds have never faced such amounts of money. Besides, we ask for help through the Ukrainian mass media. Local TV channels help us by showing video about Taras: http://www.youtube.com/watch?v=_KlDkT536yA http://tsn.ua/dopomoga/dopomozhit-vryatuvati-zhittya-tarasu-412828.html , http://society.lb.ua/life/2015/06/02/296946_molodomu_ottsu_boretsya.html
Finally, we have our pages in social nets: https://www.facebook.com/SaveTaras https://www.facebook.com/groups/SaveTaras/permalink/884478151594710/ http://ok.ru/group/52533644558516 https://vk.com/club29851425 Video clip in English: http://www.youtube.com/watch?v=mLORkVH7ihs
Taras is very caring, sensitive, kind and responsive. We are very happy together. We are not dejected in spite of the current situation. We are positive, constantly looking for means and opportunities to solve this problem and always support each other. We were going in for cycling and badminton together, painting miniatures together, donating clothes and other stuff we were not in need any more to homeless people. Our 1-year-old son was born when we were together as well and now we want to bring him up together. Taras has very strong spirit, he wants to live very much! Now we are living like on a bomb. Waiting for the results of blood tests is torturing us. Nobody knows how long the remission can last (the previous one lasted for half a year). The organism may not stand chemotherapy anymore. This issue is so very much vital and we beg you to help us!
HOW TO SEND US YOUR DONATIONS:
For foreign residents:
PayPal account: ekateryna@rambler.ru Joint Stock Company "The State Export-Import Bank of Ukraine" Dnipropetrovsk Branch MFO (sort code) 305675 26 Lenin str., Dnipropetrovsk 49000, Ukraine SWIFT: EXBSUAUXDNI MUSAIEVA SIMNARA 26203010116229
For Ukrainian residents: PrivatBank card number: 4149 4978 2948 6713 Card holder’s name: Musaieva Simnara Oktaievna (Taras’s wife) Tel./Viber: +38 099 619 03 23 Musaieva Simnara (wife) 050 362 39 42 Natalia Ivanovna Gromadskaia (Taras’s mother) Pages in social nets: https://www.facebook.com/SaveTaras https://www.facebook.com/groups/SaveTaras/permalink/884478151594710/ http://ok.ru/group/52533644558516
Video in English: http://www.youtube.com/watch?v=mLORkVH7ihs
Video in Russian: http://www.youtube.com/watch?v=_KlDkT536
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