Help Simone survive ITP with Nplate
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$2,015 Raised
20% of $10k goal
14 contributors
0 days left
Ended Dec 11, 2014
Hi my name is Simone i was diagnosed with a rare bleeding disorder called ITP 3 momths ago it is very agressive . under 10 platelettes count causes imternal nrain bleeds spontaniously . i have hit under 10 and as low as 0 4 times in 3 months. ... More ...

Hi my name is Simone i was diagnosed with a rare bleeding disorder called ITP 3 momths ago it is very agressive . under 10 platelettes count causes imternal nrain bleeds spontaniously . i have hit under 10 and as low as 0 4 times in 3 months. ivig treatment is a life saver but unfortunately it has stopped working for me . i am on the highest amout of steroids to keep my count up wich is failing . the steriods are making my kidneys fail my only other options in canada is splenectomy and i have lupus itp asthma and many other infection prone problems. my survival rate for splenectomy is 50% and thats not good odds for only being 25 years old . it is very agressive and nplate is 16,000$ for 4 injections and is not covered i have no medical and even under medical it is not covered . i am running out of options and nplate can put me into remission even if just for a year or teo i would like to stay alive.If i have a brain bleed i will die it is irreversible because the only way to bring them back up is with ivig and i do not respond to it. i have no other option but to try and raise the money there is no way to tell if this will work but i am willing to try a round to see it is my last option for survival. thankyou for taking the time to read this and god bless xo

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