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Who: My close family friend Amy and her amazing daughter Breegan and family.
What: Breegan needs to get to a medical conference in Pennsylvania for some much needed therapies to support her condition "Lissencephaly"
Why: My close friend Amy has this amazing and strong baby girl, Breegan who was diagnosed with an extreme brain malformation, Lissencephaly "smooth brain", and for which there is no cure. Breegan has already shown how strong and special she is, accomplishing feats that doctors doubted she'd ever be able to do, and displaying small improvements each and every day.
While Breegan’s family has many ongoing medical costs to support Breegan’s continued development, all donations given to Breegan for this fundraiser will be used directly to get her and her family to a yearly medical conference in Pennsylvania, which she'll be given one-on-one therapies with a world renown doctor that specializes in her condition. Her family will learn new therapies to do at home with her as well.
She attended this conference this past summer and her improvements were astounding. I saw this first hand! She never used to focus on me when I’d talk to her, but her eyes are dead-on focused now. She has muscular issues with her spine and after her conference last summer she is now able to prop herself up while sitting, she’s able to put weight on her legs (she used to automatically pull her legs up in a ball), and the best part is that she’s able to grasp objects and bring them to her mouth – she’s on the road to feeding herself!
These great strides would not have been possible without these conferences, however they are taking a financial toll on this very loving family. Amy and her family has been there for me and my kids in ways I cannot explain in words. I want to pay back the favor and help raise funds to send Breegan to this conference again.
Thank you, in advance, for any support and prayers given for Breegan and her family. God bless.
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