My name is Eva. I am 4 years old from Ukraine, and I have Spinal Muscular Atrophy (SMA Type II).
Our family has already taken the first important step in my treatment. I have received my first dose of Spinraza , a medication that can help slow the progression of SMA and preserve my motor functions.
This first dose has given us hope, but the treatment cannot stop here. Spinraza requires continued dosing according to the treatment schedule. Without the next doses, I may lose the progress that has already been achieved.
Unfortunately, in Ukraine access to Spinraza through the public healthcare system is extremely limited. There is a long waiting list, and there is no guarantee that I will receive the medication in time. Because SMA is a progressive disease, every delay increases the risk of irreversible loss of muscle function.
Our family is raising $134,000 to continue my treatment and give me the chance to keep fighting this disease.
Every donation, no matter how small, brings me one step closer to a healthier future.
If you are unable to donate, please consider sharing my story with others.
Thank you for your kindness, support, and hope.
