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Share this campaign No thanksRuslan Kaznovetskyi hasn't added a story.
My name is Eva. I am 4 years old and I live in Ukraine. ❤️
I am living with Spinal Muscular Atrophy Type III , a rare and progressive genetic disease that affects muscle strength and movement.
My doctors have recommended Spinraza (nusinersen) , an FDA-approved treatment for Spinal Muscular Atrophy that can help preserve motor function.
Treatment requires ongoing doses, but access to Spinraza in Ukraine is extremely limited. Our family cannot afford the treatment on our own.
We are raising $125,622 to cover Eva’s Spinraza treatment and related medical expenses.
I understand that a fundraiser of this size requires trust. That is why our medical documents, treatment information and invoice are publicly available for verification. I am not asking you to trust us blindly — please check everything yourself.
If you can donate, any amount can help. If you cannot donate, please share Eva’s story.
Eva is only 4 years old. She doesn’t deserve to go through this. No child deserves to go through this. ❤️🙏
Please help us give Eva a chance.
With gratitude,
Eva and her family
❤️
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