Skip to content
  • Find campaigns
  • Start
  • How it works
  • n
    • Signed in as
    • Partner Portal
    • Create a campaign
    • Campaigns
    • Organizations
    • Contributions
    • Messages n
    • Account
    • Support
    • Sign out
  • Sign in

Your share could raise £30

Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.

Share this campaign

No thanks

Not ready to contribute just yet?

Subscribe to email updates on progress of this campaign.

Subscribe

No thanks
Please help me shorten the 44 week time to see a neurolgist and rheumatologist
SubscribeUnsubscribe
✖
Gallery (0)
£806 raised
129% of £627 goal
12 contributors
87 Days running
Contribute
  • Add on tab
  • Pin it
  • SubscribeUnsubscribe
  • Embed
By Sandra Jensen
  • Contact campaign
  • Report
Personal campaign Keep it all Hove, England, GB
  • Story
  • Highlights
  • Updates3
  • Activity12
  • More
    • Story
    • Highlights
    • Updates3
    • Activity12
  • Contribute

Sandra Jensen hasn't added a story.

 I sit here, wondering how to write. What to write. My story feels endless, and therefore boring, I’m sure. 44 weeks, at least in pregnancy, is post-term, past due. In NHS terms, it’s how long it takes to see a specialist.

I know you all want me to be better, I want me to be better! And I am, in so many ways, thanks to your support. But I still have some ongoing – and some new – symptoms that severely affect the quality of my day-to-day life.  At times I feel utterly desperate, and quite useless as there is so little I can do, for myself and for others. I glance over Facebook and the hundreds/thousands of stray animals in Bosnia needing help, help that I would normally be able to assist with, but no longer.

And I want to stop defining my life by my physical situation, and I know this is possible, even if the symptoms don’t go away. I just need help, solid, professional help.

My main issues are:

  • Burning feet and hands at night, waking me up constantly.
  • Blurred vision every few days or more, so I can’t read.
  • Excessive dry mouth and dry eyes.
  • Fatigue, of a new type, for the past 6 weeks. I am constantly exhausted. I get up, eat /shower, then I lie down for an hour or two. I get up, can manage an hour or two maximum doing a couple of things, and then I have to lie down again. By then its time for supper, and then for bed. My ‘useable’ hours are shorter than they’ve ever been other than last year when things were really bad.

My GP has done all they can and now I’ve been referred to three consultants: gastroenterology for my ‘severe pancreatic insufficiency’; a neurologist for the blurred vision and burning feet, this latter could be small fibre neuropathy and this can be progressive – moving up the body, and a rheumatologist for the dryness and exhaustion, to see if I have something called Sjogren’s Syndrome. This too can have severe complications, and needs – but rarely gets - early diagnosis.

So, I have been told it will take 44 weeks to see any of these specialists on the NHS. That the ‘normal’ wait time is in fact about a year. The NHS is broken, my GP tells me. Not comforting words.

 

I am getting used to physical suffering, more or less, but if there are things that can be prevented by earlier diagnosis, or at least actually diagnosed  so I know what is going on and not spend my few available hours searching the internet or checking support groups for information, it would make a huge difference. Perhaps I could start thinking about other things than my health. Perhaps the bags under my eyes might lessen. It took me a while to have the courage finally post a photograph showing how I 'really' look.

 

I don't think I can wait 44 weeks.


So,  I would like to make two private appointments – one for a neurologist, and one for a rheumatologist (my gastric symptoms are the least problematical at the moment). I am hoping if there are further investigations needed, they can refer me back to the NHS, as this often is possible.

The neurologist is Dr. Dennis Chan, I have chosen him on the recommendation of others who have seen him, but also because he is heading up a Long Covid cognitive study and as I essentially have a version of LC, this might work in my favour.  I will also ask him about other neurological related symptoms I have.
His fee is £280.

The rheumatologist is Dr. Vijay Hajela, who comes *very* highly recommended by my doctor and others.
His fee is also £280.

This is a new fundraiser, to try to cover some of this - the old one feels messy and not specific enough. Again, asking for help  - financial help – is very difficult. I have no expectations. The tiniest amount helps. And if you have read this far, I’m deeply grateful.


So:


Neurologist consult: £280

Rheumatologist consult £280

Total:  £560

Paypal/Fundrazr fees @12% £67

Total: £627

Note:

If the percentage I've put for Paypal/Fundrazr deductions is too much, I’ll put it towards animal rescue.

If you want to help but only feel comfortable supporting one thing or the other, just let me know.

If a bank transfer is easier, let me know. My email is sandra@sandrajensen.net.
If you prefer to donate directly via paypal it’s to: sandra@sandrajensen.com

The text to this fundraiser is mostly from my lastest blog - and links to all the posts about my health journey, but you can find the rest of me on my website: https://www.sandrajensen.net


My in-house acupuncturist hard at workMy in-house acupuncturist hard at work


 

  • Activity feed
  • Email
  • ✕

Highlights

See all activity12
Show more

Updates

Navigate to communications for the ability to change recipients, manage your drafts, and view/edit your scheduled updates.


Subscribe to receive updates by email.
Sandra Jensen hasn't posted any updates yet.
Newest | Oldest
Show more

Activity

Show more
Recent contributions
Show more
Browse View Slideshow Add Hide comments Comments ✕

Uh oh!

Your media gallery is empty. That means you're missing a powerful opportunity to bring attention to your cause.

Add pictures now

(You can add videos, too.)

The media gallery is empty.

Add
Comment Share Delete Set as
Show more

Delete media item?

Delete this item from the media gallery? It will also be deleted from any related story update.

Cancel Delete

Set as ?

The campaign video will appear in social media and email.

The campaign cover picture will appear in social media and email.

The will appear at the top of your campaign page and in social media and email.

Cancel Apply

Reset ?

It won't be used as default in social media and email. The will remain in the media gallery.

It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.

Cancel Apply

Edit description

Cancel Save

Add to a Facebook Page tab

You can add to a tab on any Facebook Page which you manage.

Please note that as of Nov 2017, only Pages with 2,000+ fans are able to install custom tabs.

How to remove a Page tab It looks like you don't have a Facebook Page yet. How to create a Facebook Page It looks like you don't have a Facebook account linked. Click here to edit your account settings

Facebook Page Fans Campaign Action
Close

Replace?

Cancel OK

Embed

Embed a campaign widget on your Website or blog with just a few snippets of code.


Loading preview

Help

Embed a campaign widget on your Website or blog with just a few snippets of code.

Include the Loader script on your page once.
Copy to clipboard
Include the Widget code where you want the widget to appear on your page.
Copy to clipboard
Help

Share a link

Send anyone this link to the campaign.
Copy link
Download QR code

Delete update

Delete this story update?

Any pictures or videos will remain in the campaign's media gallery.

Cancel Delete

Delete milestone

Delete this milestone?

Cancel Delete

Share this post

Contribute now

Edit your message

Cancel Save

Report campaign

Report submitted

Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.

Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.

Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.

Tell us about the problem. Please fill in both fields below.

Please fill in both fields above.
Close Cancel Report

Record a video

Upload a video

Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.

Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.

  • Most effective video length: about a minute.
  • Maximum length: 5 min.
  • You can preview or redo your video before you post it.

Heads up! The existing video will be replaced.

Email your friends

Share this campaign with up to 10 of your friends. We'll send them details of the campaign and your personal message (optional).

Add up to 10 email addresses separated with a comma.

We never share email addresses or send spam.

Join our team

Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.

Please provide a valid message (500 characters maximum).

Say it in video

Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.

Remove video

Add a personal goal

Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.

£ .00
Please enter a valid goal.
Cancel Join our team Update

We have a video!

Video thumbnail

We'd love to show you our campaign video. Want to take a look?

Not now, thanks Yes, definitely
Sandra Jensen is managing the funds for this campaign. The campaign is for a personal cause.

, you're already on the team.

Crowdfunding by
FundRazr

Fund anything

  • Personal Fundraising
  • Nonprofit Crowdfunding
  • Business and CSR
  • Sports Fundraising
  • School Fundraising
  • I want to donate

Learn more

  • How it works
  • About FundRazr
  • Pricing and Fees
  • Blog
  • Countries and Currencies
  • PayPal, Stripe

Crowdfunding by

FundRazr

Raise money online with best-in-class free fundraising site and platform for nonprofits, individuals, businesses and teams.

Create your own fundraiser

Follow us!

  • Contact this campaign
  • Support
  • Terms of service
  • Privacy policy

Copyright ©2009-2023 ConnectionPoint Systems Inc. (CPSI) · FundRazr® and the FundRazr® logo are registered trademarks of CPSI.