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Sebastian Major is 16 years old. He is a loving, caring young man who
enjoys reading, video games, hanging out with his friends, and, like
most kids, fighting with his brother and sister.
In October 2011, Sebastian was diagnosed with Stage IV
Neuroblastoma, a cancer that starts in the nerve cells, and is rarely
found in children over the age of 4. He is nearing the end of a long,
difficult road. His initial treatments were at St. Louis
Childrens. He has endured 6 rounds of high-dosage chemotherapy, a
bone marrow transplant, 18 bone marrow biopsies, a major surgery to
remove a large mass from his abdomen, and countless tests and scans.
He had 2 rounds of mibg radiation therapy in Cincinnati, OH, and 40
rounds of palliative radiation at Carle Hospital in Champaign, IL.
He also received treatment at Comer Children's Hospital in Chicago,
where he had a team of oncologists who specialize in Neuroblastoma.
We were unable to improve his disease. In July 2014, following
complications due to chemo, Sebastian decided to stop treatment.
He's been on hospice care ever since then.
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