- Pin it
- SubscribeUnsubscribe
- Embed
Gwen Barlee hasn't added a story.
People living with Lyme disease in British Columbia can’t get adequate medical treatment here.
This was supposed to change with the launch of the Complex Chronic Disease Program at Women’s Hospital in 2013.
The Program was created to provide treatment for
patients with Lyme disease, however, when finally accepted into
the Program,
instead of treatment for a bacterial
infection, patients only received cognitive
therapy and suggestions for exercise pacing.
We need to find out what happened behind the scenes and help
the Program get back on the right track.
To help us do that several months ago we filed a Freedom of
Information (FOI) request.
An FOI request enables citizens like us to access internal
government documents.
In this case we wanted to access internal documents about the
Complex Chronic Disease Program and find out why a
program that was launched to treat Lyme disease suddenly began to
flounder.
In the past we have used FOI's with great success.
In 2011, we forced the release of the "Schmidt Report", written by the BC’s
government’s own expert, which said they were doing an abysmal
job of managing, diagnosing, and treating Lyme disease. You
can read that groundbreaking report here. The release of the Schmidt Report triggered
the BC government's announcement of the Complex Chronic
Disease Program. The day after the story broke in the
media, the government announced funding for the Program and hope for
Lyme disease patients.
This is where you come in.
When we filed our latest FOI regarding the Complex Chronic Disease Program, the government said the records wouldn’t “contribute positively to the public interest,” and that we would need to pay $2,160 in order to access the information!
As Lyme disease patients, we don’t have that type of
money. But if each of us contributes $5, $10 or $15, we
can access records that will help hold this government accountable
and get the Program back on the right track.
We have excellent news. Dr. Liz Zubek, who was a doctor at the Complex Chronic Disease Program (before she resigned in disgust), is matching every dollar we raise!
You read that correctly. For every dollar that we raise
Dr. Zubek will match it, dollar for dollar. As someone who
worked at the Program, she understands that these important
health records are in the public interest.
Thanks for taking action. Together we can do this!
Highlights
See all activity21Activity
Help Lyme Patients Learn the Truth Community
Our community shows our leading supporters and the contributions they've made or inspired by sharing our campaign.
How it works
To appear in our community, simply make a contribution to our campaign
and show your name, or inspire a contribution from someone else by sharing your personal link (below).
The more contributions you make or inspire, the higher you'll go and the more the campaign will benefit.
How it works
To appear in our community, simply make a contribution to our campaign
and show your name, or inspire a contribution from someone else by sharing your personal link (below).
The more contributions you make or inspire, the higher you'll go and the more the campaign will benefit.
Here's your personal link to share:
CopyDelete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Endorsement banner
- Endorsement banners have been proven to lead to more contributions.
- If you change your mind, you can always adjust your endorsement banner settings from the Share page.
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.