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Jennifer Caparelli hasn't added a story.
I am Jennifer, Senna's cousin and I'm starting this
fundrasing so we can support Anna with medications and
treatments that Senna needs due his brain tumour.
It's
not easy to devote 10 years of your life, fighting to save
your son's life without much of support and being a single
mom.
Lets please help Senna, he needs us!
Your
support is very much appreciated.
Senna was diagnosed with a rare brain tumor called
crainyofaringoma at the age of 2. The doctors at SickKids
Hospital surgically implanted an omya reservoir into the
tumor and tried to drain it at the same time they injected
the tumor with blyomisen a chemocoktail. It was
unsuccessful. At the age of 5 the tumor continued to grow
and damage the optic nerve leaving Senna blind in the left
eye and very little vision in the right…his entire
endocrine system is compromised and he has several
medications that he takes for life. The neurosurgeons
decided it would be best for him to have craniotomy, a
very invasive 9 hour open brain procedure with no
guarantees…this was very successful. After 5 years of
recovery Senna experienced a lot of pain and suffered with
viruses and illness…in 2010 the tumor once again began to
grow the doctors were a little unsure as to what they
could do as operating was not an option and chemotherapy
proved unsuccessful so they approached it with
radiation…in 2013 Senna began a 6 week radiation treatment
and since we had to go every day he missed school . this
treatment was successful and the results were positive
however the radiation changed Senna. He was very fatigued
and sad most of the time….His journey was not over as in
November 2015 MRI showed that the tumor once again started
to grow this time it was heading in the direction of the
optic nerve in the right eye….again the doctors wanted to
observe him and in January 2016 Senna almost lost the
battle when he was rushed to sick kids emergency as he was
in septic shock and his immune system was shutting down.
After several months the doctors agreed that a second
batch of radiation is the best way to aggressively stop
this growth in its tracks…On May 24th 2016 Senna started
radiation and he will continue for the next six weeks…..
This has left me unable to work for the past 10 years
as his full time caregiver…senna wont be finishing grade 9
and will have to mist likely pick up next year…thank you.
Regards,
Anna Prezio
416 841 9493
prezioanna@gmail.com
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