Hi, I'm Rachael and I'm 18 years old.  I suffer from a rare genetic disease called Ehlers Danlos syndrome.  Not many people have heard of it but the effects are debilitating.  So, what does it do to me??

Well, I constantly dislocate ALL joints including ribs & knuckles(umm excruciatingly painful & I'm on a bucketload of expensive meds to help control pain), my bladder no longer works (won't go into details about what I've gotta do to manage that!), my bowel no longer works (yup, I've just had a colostomy bag fitted).  I often faint for no apparent reason and have fits.  Yeah.... not a lot of fun and rather cramps my style but staying positive is my aim and raising awareness & a cure is my ultimate goal. 

Soooo, when I'm not exhausted by pain & no sleep I keep a blog called "Rachaels Health Journey" http://rachaelshealthjourney.blogspot.com.au , I speak at places like Rotary (exhausting but I love it) and help other children with disabilities by doing some part time work (when I am able) for the Save the Children Fund. 

My mother is my carer and together we battle this debilitating disease and try to remain positive as each obstacle arises. 

So, what am I raising money for??  I am constantly dislocating my ribs when I try to get out of bed to change my colostomy bag.  An electric bed will support my body to sitting position so I can ease myself out without causing further injury to myself.

A suitable electric bed costs around AUD$2000.  This is beyond the reach of my mothers Australian Carer's or my disability allowance.  I appreciate that we are supported in this way but trying to get $2000 together is where I'm asking for your support and care.

I really appreciate any donation whatsoever, all of which will assist me lead the most fulfilling life that I am able.

Thank you so much for your support.

Rachael Ralston.