Our newborn son Victor Mitchell hasTracheomalacia (Laryngomalacia) His case is extremely rare and he was born at a specialized hospital. He is currently 4 hours from us in Portland, Maine and possibly to be transferred to Boston, Mass and we have no expenses to get to visit him We have not been able to hold him since he was 3 days old and now hes 13 days old=(( He was born on November 2nd 2012. AS of today November 15th 2012 he is 13 days old. They just transferred him From Eastern Maine Medical center in Bangor, to Barbara Busch's Children Hospital located at Maine Medical Hospital in Portland, Maine. He then will most likely be transferred to Boston hospital in Massachusetts. Congenital tracheomalacia is a weakness and floppiness of the walls of the windpipe (trachea), which is present at birth. In a newborn the problem occurs when the cartilage in the windpipe (trachea) has not developed properly. Instead of being rigid, the walls of the trachea are floppy. Because the windpipe is the main airway, breathing difficulties begin soon after birth. His case is so rare because when they did the scope they found his entire windpipe from the back of his nose down into his lungs is entirely floppy!. He has been on a ventilator since he was 2-3 days old to keep him breathing and to put pressure on his windpipe. He currently is weighing 7 pounds 4 oz at 13 days old. He is absolutely beautiful and we LOVE him dearly, I would trade places with him in a heartbeat if it ensured his safety!!! He is perfectly healthy besides this problem, his lungs are working properly and all his other organs. They constantly have to keep him on a sedation drip and sedation shots every 2-3 hours because he knows how to grab the ventilator and pull it out. He does breathe on his own but without thew ventilator when he starts to get stirred up or agitated he tries to breathe and his windpipe collapses. Sometimes babies will just take time to outgrow this. His case is unusual which will likely require surgery. They are thinking about giving him a trach tube(in the neck so he can breathe) that's if it doesn't harden on its own. The Dr.s really are not wanting to wait to see if it does for very long as they want him off his ventilator ASAP. He is being fed through the tube in his nose since he was 2 days old. We were told by one doctor that they had one other baby in 15 years with a case similar to him and there was nothing they could do for the baby. Very sad news that left us heartbroken. Another doctor at the special hospital he was shipped to on Nov,14th 2012 said there are alot of options available for him depending on what they find on another surgery(scope) that they will be doing today November 15th or November 16th 2012. I currently take care of my disabled husband who has had a total hip replacement and next are his shoulders and then his knees. It is very hard right know and need prayers for our beautiful baby boy more than ever! We currently live about 3 hours away from the hospital he is currently at. If he gets shipped to Boston or when he does we will be 5 hours away. I currently do not drive as my suv has transmission problems and we live off of limited income from my husband. We DO NOT have the funds to go to visit him, I have a few friends who could POSSIBLY drive me down there but it cost money to do that which we do not have that and enough to pay the bills at the same time. We have a beautiful nursery that we have to look at everyday without a baby to bring home to it. also our dog(we used to foster dogs) who is waiting to meet him.We have never used a fundraiser and are hoping for help from this page. I wasn't really sure how much to put down, as I have no idea how much it would take to visit him as far as how long he will be in NICU. There is a bus line Concord that we could travel(which my husbands in a wheelchair so its more difficult for him). The money would definalty help for the rides down there and back b/c he could be there for months and months=( Also it would help with paying for a room so we could stay and visit him. It kills me not being down there right now as we stayed at a motel in Bangor for 14 days and it took everything we had at $150 a night. No amount is to small or to much. Maybe we can raise more than the $2,200 so we can stay down there more often b/c hotels are very expensive along with gas. We are going to set the end date for pretty soon as we need the funds as quickly as possible so we can go visit him especially when he needs the surgery! Thanks so very much and God Bless and even if you cannot help please keep him in your prayers! Thanks for your support=)