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Hello family, friends, and supporters! I am a 37-year old survivor of an extremely rare bone tumor (desmoplastic fibroma), and have decided to embark on a journey to create more awareness and provide funding for more research for these rare tumors to help physicians and patients better understand these conditions, procedures, and treatment/recovery.
I learned my tumor had recurred and was recovering after undergoing a more aggressive/radical treatment (in my right femur, as pictured) to replace my knee as well as half of the femur - the typical treatment for malignant osteasarcoma (my 5th operation in total) when I decided to create this group for information sharing, moral support, and overall awareness of bone tumors. This is pretty much a testament to how aggressive and grueling these tumors are, whether they are benign or not - that the treatment is similar or can be identical to that of a cancerous growth of the bone.
These tumors happen in the 2nd and 3rd decades of life; therefore, the majority of individuals enduring this pain, multiple operations, and lengthy recoveries are in their childhood, teens, 20's and 30's. These are ages that are supposed to be the most active, fun, and joyful for youngsters and able-bodied people to be exercising, playing sports, etc. Surgeries can be extremely invasive, painful, and continual.
My goal is to create more awareness of these tumors that are vary
rare (they make up approximately 2% of all tumors) and there are only
about 120-200 orthopedic oncologists in the United States able to
treat these rare growths. Not to mention, in major cities and
teaching institutions, rather than equally spread throughout - making
it difficult for some patients to travel to see exactly who they need
to see.
I'd like to be able to create a community where survivors of
these tumors can share their experiences with one another and provide
support, as well as to start a fund that will benefit research toward
a particular body of medical science that will be dedicated to
learning more about muskuloskeletal lesions/tumors.
For more information about bone tumors, please visit www.bonetumor.org. EVERY dollar counts. Many
perks are available to select with a donation.
PLEASE like us on Facebook, www.facebook.com/bonetumorawareness, and/or
Instagram @bonetumorawareness. Many giveaways of great products
relative to orthopedics and recovery occur for members of the cause!
Perks
- 6 claimed
This is such a GREAT way to spread the word - whether it's for yourself or for a friend/supporter/warrior or even your DOCTOR - this is a GREAT gift re; Bone Tumor Awareness. With a donation of $15, you will receive a bone pen, a BTA sticker, and some product samples from our generous donators!
- 2 claimed
Beautiful turquoise beaded hairband, BTA colored! You can style up your workout, OR add flare to a night on the town with a new hair accessory that adds a beautiful color to any outfit! THIS PERK will come with a BTA sticker and available partner samples.
- 8 claimed
- 4 remaining
Handmade in Costa Rica, these bracelets are featured in Light/Medium Blue, Bone Tumor Awareness' color. They have an adjustable string enclosure - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.) THIS PERK will come with a BTA sticker and available partner samples.
- 4 claimed
- 0 remaining
Handmade in Costa Rica, these bracelets are braided premium bracelets featured in Light/Medium Blue, and white. They have an adjustable string enclosure with bead - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.) THIS PERK will come with a BTA sticker and available partner samples.
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Bone Tumor Awareness Fund Community
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Copy- 6 claimed
This is such a GREAT way to spread the word - whether it's for yourself or for a friend/supporter/warrior or even your DOCTOR - this is a GREAT gift re; Bone Tumor Awareness. With a donation of $15, you will receive a bone pen, a BTA sticker, and some product samples from our generous donators!
- 2 claimed
Beautiful turquoise beaded hairband, BTA colored! You can style up your workout, OR add flare to a night on the town with a new hair accessory that adds a beautiful color to any outfit! THIS PERK will come with a BTA sticker and available partner samples.
- 8 claimed
- 4 remaining
Handmade in Costa Rica, these bracelets are featured in Light/Medium Blue, Bone Tumor Awareness' color. They have an adjustable string enclosure - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.) THIS PERK will come with a BTA sticker and available partner samples.
- 4 claimed
- 0 remaining
Handmade in Costa Rica, these bracelets are braided premium bracelets featured in Light/Medium Blue, and white. They have an adjustable string enclosure with bead - meaning, they don't have to be tied & knotted, easy to take on and off. Your donation will make a difference for this cause in that it will contribute to the awareness (the creation of a website, the time/efforts/materials to contact industry players and physicians that can help get the word out, etc.) THIS PERK will come with a BTA sticker and available partner samples.
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