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Lisa Wightman hasn't added a story.
My name is Lisa and I am married with 3 beautiful children. I have an amazing family and a very close group of friends whom I would go to the ends of the earth for.
3 years ago I felt the pain and desperation that comes with the loss of a family member. My only sibling, 3 years my senior at the age of 37 was diagnosed with a disease called PICKS. It is a relatively rare illness grouped under the umbrella of Frontaltemporal Dementia. Other disorders in this group include, Corticobasal Syndrome, Motor Neurone Disease and Behaviour Variant FTD to name a few.
Through a necessity to find out more information about the disease that was taking away my beautiful sister we found the AFTD organisation based in the US. This non-profit organisation is working tirelessly to raise awareness, research and ultimately prevent this horrific disease.
Even over the last few years vast amounts of progress have been made and they have identified proteins in the body that can cause these degenerative diseases. More funds are urgently needed to further investigate and research into this area to hopefully prevent families like ours in the future from being torn apart.
Unfortunately for my sister it is too late for prevention or cure and she has now deteriorated to such an extent that there is very little left to recognise the amazing woman she was. My sister was a clinical trials nurse and we know she would want to find a way to prevent this horrific disease.
So in honor of her along with my family we would like to raise as much money as possible to help the AFTD in their mission to raise awareness, educate and support families and ultimately cure Frontaltemporal Dementia.
The week of 4th-11th October is a dedicated FTD awareness week and the theme for this year is Food for Thought. If anyone wishes to host an event during this week you can send funds to myself or directly to https://theaftd.givezooks.com/
To kick this off myself and my dad will be doing a dual weight loss sponsor starting September 27th for a period of 12 weeks during which we will endeavour to lose a combined weight of 4 stone. Regular updates will be posted via Facebook.
So dig deep and as we drop the fat pounds we hope to gain it in gold pounds. Please donate via PayPal, every penny will be heading straight to the AFTD and together we can beat it.
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