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My daughter Brina Beal was diagnosed with Juvenile Rheumatoid Arthritis at the age of 4. Nine months later she was diagnosed with Crohns Disease. She has tried several options to maintain a normal life and keep these monsters at bay. However they have not worked. She has tried Methotrexate(Chemo), Enbrel,Humira, Steroids, and even Joint injections. She is currently On a monthly infusion of Orencia to try and controll the inflamation. If the Orencia does not work there is one Medication left to try which is Remicaide. After that she would be entering Trials. Trials are were children take medication that is not FDA Approved nor Approved for use in Pediatric Patients. I am not ready to make those choices for her. I need to attend the Annual National Juvenile Arthritis Conference that is being held in Anehime California this year. Here I will learn all there is to learn about the disease its self, the medications and the side effects of the medicaitions along with information on upcomming Trials. I need this information to make the right choice for my daughter. She would also benefit emotionally from meeting other kids like her and finally knowing first hand that she is not alone in this fight.However I can not currently afford the trip there for the conference for this I am asking you for help. Any donations big or small will help and will be greatly appriciated.
http://magicvalley.com/news/local/jerome-family-wants-to-learn-more-about-daughter-s-arthritis/article_6ce41bcd-103b-5155-99c4-85e3be30f478.html?comment_form=true#comments
http://magicvalley.com/news/local/online-exclusive-another-chance-to-help-jerome-girl-with-juvenile/article_204e1620-c881-11e2-ac7b-0019bb2963f4.html
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