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Kamila Świerczyńska hasn't added a story.
Hello
I am from Poland. My names is Kamila Świerczynska.
I suffer from 2 years of undiagnosed disease . Because of severe pain in soft palate I stopped eating and lost weight to 38 kilos. Doctors were helpless . The pain did not allow me to sleep or not normally exist . My life turned into a nightmare . On the reasons for exhaustion no longer I got up out of bed.
In the end, despite the pain , I started to eat the strength and managed to significantly gain weight . However, 3 months joined consecutive symptoms :
- 3 months continuous headache as it is the food poisoning , motion sickness ,
-nausea and diarrhea daily .
-In addition, each scent intensifies ailments. Even my favorite scents . Do not eat already , eg raspberry yogurt . Hard for me to get up out of bed . At my own wedding , I could not stand up
-joints pain
At the moment, every day is torture . From morning counting
down the hours when I go to sleep and wait until I can sleep.At
morning and wakes me up so abdominal pain and diarrhea.
I have ANA antibodies very high because 1: 640 which
indicates the disease autoimunology For example, in systemic
lupus antibodies ANA is usually only 1: 160 in the hospital for
rheumatology (autoimmune disease) last year nothing was done
apart from the morphology !! No tests for autoimmune diseases
and there are plenty of such antyLKM-1, SMA.anty SLA antibodies,
LP anti LSP, ASGPR at the end of two weeks ago to visit with a
rheumatologist in private doctor recommended to do research on
anti-TG (affecting the thyroid gland), despite the fact that I
have a very good TSH. And it turned out that the results have a
4 times over norm.Its does not indicate it autoimunology thyroid
disease (because if they were to other antibodies) but rather a
general autoimmune disease that attacks the organs. The suspect
is a connective tissue disease, and even genetic disroders.
Tests are very costly. Also it arose the idea to direct me to
the Mayo Clinic in America, but the costs are very big.I got email
from Mayo Clinic and cost for diagnosis will be around 13.000-17.000 dollars.
In my country i will never got diagnosis-example now i was in hospital - they give me some medicine for stomach pain then after few days they was scared why in tests my Prolactin level is hight and starts talking about cancer.Then i visit private endocrynology and he found in hospital they gave me pill called Metoclopramide- after give it prolactin level in blood can grow even 6 times! So they was even not able to diagnose ailment which they made by themself- so how they will find diagnose in some complicate case?
I will be grateful for any auxiliary every dollar counts. If anyone knows of a good doctor is also , of course, I will be grateful for help. Also if some doctor read it and will be able to put me in some clinic for test or something.
Thank you in advance
My email is dekhonaa@wp.pl
Phone nr is +48 739 535 872
In "Updates" are my photos-email from Mayo Clinic and some medical papers
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