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Elijah Wesley Dickens was born March 28th, 2017 with a rare genetic skin condition, Epidermolysis Bullosa (EB). He is currently in the NICU at Crouse in Syracuse, NY. His mother, Jennifer is a stay at home Mom while her husband works in a local factory after serving in the military for 6 years. The family has two other children at home Gabriella, 2 and Jacob, 3. The family is just beginning this journey into wound care, advocacy and fighting for Elijah's life. If you are able to help in any way, donating any amount or offering a meal is greatly appreciated.
Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of." Epidermolysis Bullosa (ep-i-der-mo-lie-sis bu-low-suh), or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects both genders and every racial and ethnic background equally. Daily wound care, pain management, and protective bandaging are the only options available for people with EB. -- Debra.org
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