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smashSMARD

Verified organization (us)lincolnshire, IL, United States Website
4 campaigns 1850 contributions received $555,394 raised Member since January 2019

The story behind  smashSMARD :

Spinal Muscular Atrophy with Respiratory Distress, Type 1.

Spinal muscular atrophy with respiratory distress type 1 (SMARD1) is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

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There is little know about this rare and often fatal disease.  Its rarity is of no comfort for the families affected by SMARD, and so we are building a community to promote awareness and research to make a cure a reality.  

To learn more please visit: www.smashsmard.org

Organization activity

Organization campaigns

smard1 gene therapy funds! #smashsmard

Committed to fund a cure and create awareness for the 100 victims of SMARD (Spinal Muscular Atrophy with Respiratory Distress) & IGHMBP2-related disorders.

$538,116 raised of $1.5M goal
2 Years running
#smashSMARD - Cocktails for a Cause - Tsukasa

Cocktails for a Cause, to help raise money for SMARD research. #smashSMARD

$11,672 raised of $10k goal
64 Weeks running
Nellis Group to #smashSMARD - WIN Washington Capitals Playoff Tix - Game 5

The Nellis Group of Keller Williams Capital Properties (Metro DC area) is offering to WIN - NHL Game 5 Playoff Tix: Hurricanes vs. Capitals. ALL DONATIONS will benefit #smashSMARD to help find a cure for an ultra-rare pediatric genetic disease SMARD.

$600 raised of $1.5k goal
107 Weeks running
Spear Training Bootcamp #smashSMARD

Your support means a lot to us. Please consider donating or spreading the word about our cause.

$5,006 raised of $3k goal
2 Years running