smashSMARD

Verified organization (us)lincolnshire, IL, United States Website
4 campaigns 1559 contributions received $486,264 raised Member since January 2019

The story behind  smashSMARD :

Spinal Muscular Atrophy with Respiratory Distress, Type 1.

Spinal muscular atrophy with respiratory distress type 1 (SMARD1) is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

There is little know about this rare and often fatal disease.  Its rarity is of no comfort for the families affected by SMARD, and so we are building a community to promote awareness and research to make a cure a reality.  

To learn more please visit: www.smashsmard.org

Organization activity

Organization campaigns

Committed to fund a cure and create awareness for the 100 victims of SMARD (Spinal Muscular Atrophy with Respiratory Distress) & IGHMBP2-related disorders.

$468,986 raised of $1.5M goal
63 Weeks running

Cocktails for a Cause, to help raise money for SMARD research. #smashSMARD

$11,672 raised of $10k goal
57 Days running

The Nellis Group of Keller Williams Capital Properties (Metro DC area) is offering to WIN - NHL Game 5 Playoff Tix: Hurricanes vs. Capitals. ALL DONATIONS will benefit #smashSMARD to help find a cure for an ultra-rare pediatric genetic disease SMARD.

$600 raised of $1.5k goal
51 Weeks running

Your support means a lot to us. Please consider donating or spreading the word about our cause.

$5,006 raised of $3k goal
55 Weeks running