The story behind  smashSMARD :

Spinal Muscular Atrophy with Respiratory Distress, Type 1.

Spinal muscular atrophy with respiratory distress type 1 (SMARD1) is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

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There is little know about this rare and often fatal disease.  Its rarity is of no comfort for the families affected by SMARD, and so we are building a community to promote awareness and research to make a cure a reality.  

To learn more please visit: www.smashsmard.org