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smashSMARD

Verified organization (us)lincolnshire, IL, United States Website
1 campaign 2323 contributions received $693,571 raised Member since January 2019
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The story behind  smashSMARD :

Spinal Muscular Atrophy with Respiratory Distress, Type 1.

Spinal muscular atrophy with respiratory distress type 1 (SMARD1) is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

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There is little know about this rare and often fatal disease.  Its rarity is of no comfort for the families affected by SMARD, and so we are building a community to promote awareness and research to make a cure a reality.  

To learn more please visit: www.smashsmard.org

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smard1 gene therapy funds! #smashsmard

Committed to fund a cure and create awareness for the 100 victims of SMARD (Spinal Muscular Atrophy with Respiratory Distress) & IGHMBP2-related disorders.

$693,571 raised of $1.5M goal
5 Years running

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