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PACS 1 Syndrome Research Foundation

Verified organization (us)old greenwich, CT, United States Website
3 campaigns 516 contributions received $181,482 raised Member since January 2020
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Funding ground-breaking scientific research to find a cure for a debilitating neuro-genetic disease.

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Organization campaigns

JOIN US IN OUR FIGHT TO CURE PACS1

In 2017, when my daughter Alya was 3 years old, she was diagnosed with a rare disease - PACS1 syndrome. We were told there was no cure and just learn to manage the symptoms, thats when we started this journey towards fighting for a cure.

$179,267 raised of $175k goal
4 Years running
Sponsor me to paraglide as I raise funds for Alya

Sponsor me as I paraglide for a worthy cause to help raise funds for research to support my friends's daughter Alya who has a rare disease called PACS1 Syndrome

$2,215 raised so far
3 Years running
Join US in OUR FIGHT to cure PACS1 ---> With a 24 Hour Sail and Half Marathon

PACS1 SYNDROME Team Choudhury

$0 raised of $5k goal
3 Years running

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