Help us Map the Gap in South Asian Genomic Data
$1,490 raised
1% of $150k goal
22 contributors
141 Days running
When we look at our parents, grandparents, and families, we see diseases that have a genetic component. Rates of cancer, diabetes, heart disease, and rare conditions are high among S. Asians. Help us #MapTheGap and create better diagnosis and treatments.

We are Mapping the Gap in Genomic Data

Did you know the incidence of genetic diseases in South Asia is nearly double that in Western Europe or North America? Imagine not knowing whether you and your partner carry a genetic disease...one your child could inherit. 

Despite accounting for more than a quarter of the world's population, South Asia accounts for less than one percent of available whole genome data. If your ancestors are from South Asia, that means a lack of carrier tests, diagnostics, and treatments for genetic diseases that could affect you and your descendants.

That's where we come in. We are GenomeAsia 100K, a non-profit organization dedicated to our goal of sequencing 100,000 Asian genomes. Map the Gap is our initiative to close the gap in genomic information for South Asian populations. 

Please join us and help to  #MapTheGap

Your genome is your recipe for life. It is your complete set of DNA and contains all the information needed to grow, develop and maintain you. Nearly all diseases have a genetic component.  For example, single gene mutations can cause sickle cell disease and Cystic Fibrosis, while multiple gene mutations (combined with environmental factors) can cause diabetes and heart disease. 

As we unlock the secrets of the human genome, we can identify the mutated disease-causing genes and determine whether you are a carrier. That's why it's so important to have genomic data from all populations.

One area where better genomic data has already made a significant impact is in diabetes. People of South Asian descent have a risk of developing diabetes that is six times higher than Europeans. Natasha, a South Asian living in Canada, knew that her mother and grandmother were diabetic. Understanding the hereditary component of diabetes, Natasha’s doctors treated her as a pre-diabetic when pregnant with her first child. She took medication, controlled her diet, and had additional blood sugar testing throughout her pregnancy. These steps lowered her risk and the risk of her child:

By understanding the genetic component of diabetes, the doctors gave me treatment that potentially saved my life and my son’s life. I am backing this campaign so that carrier tests can be developed for other inherited diseases, and more lives saved.”

By donating to Map the Gap, you are helping us create a database of genetic information on South Asians. Our data will be used to develop carrier tests for populations at high risk for genetic birth defects, reducing the incidence of these conditions over time. The database will also support research for cures to single-gene disorders and eventually for complex diseases such as diabetes and cancer.

Donate now and help us better understand, screen and treat genetic disease in South Asian communities.

Goals

  • Our short-term goal is to sequence 100 genomes from people from South Asia to address the current lack of genomic data.
  • We also want to connect with people with South Asian heritage, to help us identify people from specific communities we want to create reference genomes for.

Budget

  • We need to raise $150,000 to sequence 100 genomes.
  • As with any crowdfunding campaign, there are costs to run the campaign, which we have outlined below. We are also offering perks. Our perks are all DNA related, and we hope that they will help you start the conversation with friends and family on how important it is to have ethnicity-specific genomic data for South Asians.Map the Gap Budget

 

 

 

 

 

 

 

 

 

Map the Gap in the News

genomewebNBC News

India New England News  

About GenomeAsia 100k

GenomeAsia 100K was launched in 2016 with the goal of sequencing 100,000 Asian genomes. With partnerships from local bioinformatics leaders such as MedGenome in India and Marcogen in Korea, the scientific team has already sequenced nearly 5,000 genomes. Our efforts will enable precision medicine on a global scale and fill the gap in data that exists in Asian populations.

 

Activity highlights See all24
Follow this campaign to receive updates by email.

Map The Gap Community

Our community shows our leading supporters and the contributions they've made or inspired by sharing our campaign.

to get your personal share link and see your position in our community.

How it works
To appear in our community, simply make a contribution to our campaign and show your name, or inspire a contribution from someone else by sharing your personal link (below). The more contributions you make or inspire, the higher you'll go and the more the campaign will benefit.

Perks

$750 USD
Ancestry Test for Two
  • 0 claimed
Discover your ancestry with a DNA test for you and one for a friend or family member. Our thank you for helping us to #MapTheGap.
More ... Less ...
$20 USD
Join our database
  • 5 claimed
Thank you for your donation. Your name and information will be added to our database with the possibility we may contact you to map your genome.
More ... Less ...
$50 USD
DNA Keychain
  • 7 claimed
Spark a conversation about genomics with this Double Helix keychain. Our thank you for helping us #MapTheGap.
More ... Less ...
$75 USD
DNA Pin
  • 1 claimed
Spark a conversation about the gap in genomic data with this metal DNA pin. Our thank you to you for supporting #MapTheGap.
More ... Less ...
$125 USD
DNA Earrings
  • 2 claimed
Spark a conversation with a pair of beautiful double helix stud earrings. Made from copper and available in your choice of silver, rose gold, or gold. Our thank you for helping us to #MapTheGap.
More ... Less ...
$500 USD
Ancestry Test for One
  • 1 claimed
Discover your ancestry with a DNA test. Our thank you for helping us to #MapTheGap.
More ... Less ...
$1,000 USD
Ancestry Test for Three
  • 0 claimed
Discover your ancestry with a DNA test for you and two for friends or family members. Our thank you for helping us to #MapTheGap.
More ... Less ...
$1,250 USD
Ancestry Test for Four
  • 0 claimed
Discover your ancestry with a DNA test for you and three for friends or family members. Our thank you for helping us to #MapTheGap.
More ... Less ...
Recent contributions