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My name is Park Major. I am a disable Gulf War veteran. I was diagnosed with Marfan Syndrome in 2013 by the Veterans Administration Heath Care System. Marfan Syndrome is a rare genetic mutation where my body doesn't make the proteins it need for connective tissues. It severely effects the heart and lungs along with causing many other medical problems. As of today there is no known cure but there is testing for mutation type and treatments. The VA reuses to do any treatments since they say there is no point because there is no cure. The VA will not approve me to go to an outside doctor for second opinion and treatment options, because again, the VA claims there is no known cure. The average lifespan for someone with untreated Marfans is 42 yrs old. In 2013 my health had begun to deteriorate to the point that my doctor gave me a year to live. I have surpassed that time frame but as of yet I have still been unable to afford outside treatments. The cost of testing is $3500 to $5000 dollars , depending on what all testing has to be done. I am hoping to raise donations to cover the cost of doctor visits, testing and treatments. Any help with donations no matter how big or small, would be greatly appreciated, as every dollar will make a difference and put me one step closer to treatments and hopefully a cure. All though I am still surviving I feel without out treatments I will become another statistic. My family is counting on me to do anything I can but I am limited by my finances as I am disable. Please help me to cover these medical expenses, and please like and share to others so I can continue to fight this life threatening illness.
Sincerely,
Park Major
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