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Team Courtney
$310 raised
3% of $10k goal
5 contributors
4 Years running
Our precious baby girl was born August 28th, 1996. The pregnancy was normal and she was not pre-mature. Although, when she was born, immediately everyone knew that she had some medical problems that we had to start trying to figure out.  Right ...

Our precious baby girl was born August 28th, 1996. The pregnancy was normal and she was not pre-mature. Although, when she was born, immediately everyone knew that she had some medical problems that we had to start trying to figure out. 

Right away, she was struggling to breathe and they sent us to Pitt Memorial in Greenville and she came home on oxygen. They did a series of exams and soon decided that she needed to be assessed by the doctors at UNC Hospitals in Chapel Hill, NC. 

Then the journey began. 

One diagnosis after another and needles constantly. Hospital stay after hospital stay. We would come home for a week and back to UNC for 2 or 3 weeks. Blood transfusions, spinal taps, feeding tubes, monitors. Over her first 3 years of life, she had over 20 surgeries to keep her living and breathing. She had a hole in her heart repaired in May of 1997. She also required oxygen 24/7 the first 3 years of her life due to Pulmonary Hypertension. In Jan of 1998, Courtney went into heart failure and we were told she would need a heart transplant to survive. The doctors tried to prepare us for the worst possible outcome, but we wouldn't give up on her. She fought and fought through the worst sickness of her life (Cardiomyopathy). A virus had attacked her heart and it was very weak, only pumping blood to her major organs and not her arms and legs. They were cold as ice and blue. She had a fever of 106 and her heart rate got up to 230 beats per minute. All of our family was called in and everyone thought that she would not make it through the night. But over the next few months, she recovered "remarkably" (according to the doctors). With God's grace and mercy......she survived. 

Over the course of the next few years, she had several surgeries to correct Hydrocephalous (fluid on her brain). Shunt after shunt after shunt!!!! It got to be"barbaric" (as J. Scott said to the docs). Eventually, they took out the shunt and drilled a hole in her 3rd Ventricle of her brain (3rd Ventriculostomy). That procedure saved her from having any more shunts. Thank God for that decision. The Neurosurgeon told us that she was the "perfect candidate" for that prodedure after telling us months before that she "probably wasn't" a good candidate. Being an advocate for Courtney was our number one priority and sometimes we had to just make things happen. 

Courtney also has Hypotonia (low muscle tone) which causes weakness and growth problems. Low muscle tone is the source of alot of Courtney's growth and fine/gross motor skills. 

As she said in "her story", she is now facing one of the "BIGGEST" surgeries yet!!!! A Mitral Valve Replacement!! Her mitral valve is not doing its job and it has caused her left ventricle and her left atrium to enlarge"severly". This causes tiredness and weakness. She is such a busy girl and wants to continue to trudge through whatever comes her way medically so that she can succeed in life. God has so much in store for her. He has already used her life to touch so many and change so many lives. His mercy and grace and healing has brought her so much further than anyone ever imagined when she was 2 years old. God will see her through yet another trial so that she can learn from it and use it as she blossoms into her adult life. She is college bound and wanting to work with special needs children. She is considering becoming licensed to teach deaf and hard of hearing children how to communicate through sign language. We will see if she goes in that direction or not but right now, she is committed to learning all she can about her options. Did I mention that she is also hard of hearing and wears hearing aids daily? Again, God is going to use her and her experiences in a mighty way!!!!

And now Courtney is in need of a Heart Transplant.

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