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Help Talleulah fight MLD
£3,010 raised
60% of £5k goal
73 contributors
2 Years running
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Networkers International’s toughest athletes have bravely put themselves forward to compete in the gruelling  Tough Mudder event. They have just under a month left to physically and mentally prepare themselves for the challenge which is taking ... More ...

Networkers International’s toughest athletes have bravely put themselves forward to compete in the gruelling  Tough Mudder event this weekend! The team have spent the last 2 months physically and mentally preparing themselves for the challenge which is taking place in Winchester on Sunday 26th October. The heroic team of six will battle through mud, icy waters, fire, wall obstacles, electric shocks and any other obstacles the course throws their way, demonstrating their dedication to a great cause….

 

Talleulah (pictured above), a beautiful 6 year old girl and family friend of one of the Networkers Tough Mudder team, was this year diagnosed with a rare genetic disorder called Metachromatic Leukodystrophy (MLD) (http://en.wikipedia.org/wiki/Metachromatic_leukodystrophy).  In basic terms this means that the nerve fibres needed to protect and help the brain to function are impaired.  Without medical support it is likely Talleulah will be confined to a wheelchair within a year and her life expectancy will be approximately 10 years. 

 

There is currently no cure for MLD but there is a clinical trial currently being conducted in Milan, Italy. Talleulah is currently at the hospital in Milan being assessed to see if she is suitable for the trial. It is hoped that she will be accepted and treatment can start this year. Should Talleulah be accepted, significant funds will be required to support her through the treatment and for aftercare. Unfortunately, there is a real risk that even if accepted on the trial, Talleulah’s condition will deteriorate and she won’t be able to go through with the treatment. If this were to happen, funds would be used to not only create special times for Talleulah but go towards research and awareness of MLD.

 

The Networkers Tough Mudder’s team goal is to raise £5000 to help Talleulah. Anything you can give to help them reach their goal is gratefully received!!!

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