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Avery is an amazing young man that has had a very tough go of things since he was 4, learning of his diagnosis of Churg Strauss Syndrome (a type of hypereosinophilic syndrome (HES)) just in the past year. He also has Russell-Silver Syndrome, which affects the growth function of the body. This spring his doctors referred him to a foundation, that has agreed to grant his Big Wish - a “Tiny House” - that we are asking your help to make into his own “Little Home.” Donate $25 or more, and you will receive an autographed photograph of Avery and his new Tiny House
Electrical, insulation, drywall, paint, furnishings and a “front porch” are needed to make Avery’s dream come true. The “house” should arrive around the end of August and we hope to make it his "home" in September. If you can donate materials or furnishings instead of cash please message me and let me know. Avery deserves his DREAM!
HES is a condition where there are too many of a certain type of white blood cell that affects the immune system and may also attack the body’s organs, like the lungs, skin and digestive system. Churg Strauss is a type of HES where the blood vessels inflame and often can cause permanent damage to organs. Doctors, pills, needles, steroids and IVs have become part of the regular routine for Avery. Surgeries are mandatory. Blood tests to ensure other organs are not affected are routine. Eating can become a daily challenge. And the pain can be engulfing. Fear of the disease spreading can be overridden at times by the fear of the side effects from the medications. Avery had to leave school this past spring and hopes to be able to attend a few hours a week this coming year. Because of the number of organs it is now affecting, he is considered stage 3 - chemo is the next alternative.
When Avery had the opportunity to meet with the foundation, he had the chance to dream … and dream big. Who would you like to meet? Who would you like to be? Where would you want to go? What would you like? He had a couple days to think about it, research it and write about it. His dream .. of anything in the world? A TINY HOUSE!!!!
It is PERFECT. A place to call his own. To escape from the doctors, the needles, the pills, the pain. A place he gets to determine the rules. A place to invite and make new friends. And a place to write and play games. He told his family that he may never get to have a place of his own, so a tiny house in the back yard would be the next best thing. He has watched endless videos on tiny houses and is giving his shot at designing what his will look like. Something he is VERY excited about and looking forward to.
Please help us make Avery’s dream come true! Donate as much or as little as you can. Cash or Materials. Repost or put on your radio/TV show. I will cover the FundRazor fees to ensure that every dollar raised makes it to Avery and the Becker family. $5, $50 or $1,500 makes all the difference in the world to this special young man. Thank you!!!!
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