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mileys appeal
£90 raised
2% of £4k goal
5 contributors
3 Years running
Hi there, im Mileys mummy. Miley is 3yrs old and is the light of our lives, she was born 10wks premature after a very scary pregnancy and lots of hospital stays .Which doctors had to stop labour from 24wks. At my 20 wk scan they found out ...

Hi there, im Mileys mummy. Miley is 3yrs old and is the light of our lives, she was born 10wks premature after a very scary pregnancy and lots of hospital stays .Which doctors had to stop labour from 24wks. At my 20 wk scan they found out that miley had multi cystic dysplastic kidney ( which means she only has 1 functioning kidney and her other is dead and full of cysts ) which is going to require surgery within the next 6-12 mths to remove the dead one . When i was 30wks pregnant i had to be induced as my waters had broke 3 days before and was in slow labour and  it started to show that i had started to show signs of infection and that miley was showing signs of distress so they said it was the safest option. when she finally made her entrance into the world weighing a tiny 3lb 4oz she was whisked straight off into critical care in neonatel ,there they hooked her up to lots of wires and monitors which was very scary to see your newborn baby princess like that. There they discovered she had a bleed on her brain which had caused miley to have brain damage which we found out when she was about 2 and a half .The brain damage has affected all Mileys trunk movements which means she cant walk ,sit or stand. she also has low muscle tone which affects mostly her right side , she has regular physio. occupational therapy, play therapy  and portage sessions . she also has other health problems aswell . We have just purchased the upsee in a size small its a new invention to help children walk for the first times in there lives , which is such an amazing thing to be able to be able see your child walk for the first time which many of us take for granted. Where trying to raise funds for equpment for miley eg the next size upsee when she grows out of the one we've already bought, walking and standing frames, a hood,rain cover and cosy toes for her special adapted disability pram which doesnt come with the pram from the nhs as apparently there not essential according to them, and any other equipment that she will require in the years to come. It took me a year and a half of pestering mileys physio and occupational therapist & consultants to even get her pram as she wasnt eligible until she was 3yrs old. I just want to Thank you all in advance for all your continued support and being so kind and caring towards my baby princess miley

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